Fast-track passports proposed for people with Motor Neurone Disease

A new fast‑track passport for people diagnosed with motor neurone disease (MND) is at the heart of proposed health and social care reforms unveiled today (5 March) at the 2026 Nuffield Trust Summit.

Baroness Casey, chair of the Independent Commission for Adult Social Care, announced a set of policy recommendations to the Department for Health and Social Care (DHSC).

We have been working with the Commission since July last year, and hosted a roundtable alongside people affected by MND as part of the consultation process.

The key ask – a fast-track passport – would mirror the Department of Work and Pensions Special Rules for the end-of-life process for people with severe and progressive conditions, including MND.  

The passport would mean a diagnosis of MND would trigger faster entitlement to a full package of support, with assessments only where necessary.

The Commission is also recommending the introduction of national time frames for the provision of support. This would set clear expectations, including for the speed at which Disabled Facilities Grant (DFG) applications must be processed by local authorities.

Reporting to the Prime Minister, the Casey Commission’s work will submit its final proposals on reforming the adult social care system in 2028.

Our involvement in the Casey Commission

We first met with the Casey Commission team in July 2025, before hosting a roundtable with people with MND a month later.

Our conversations and meetings have continued and, together with our community and health and social care professionals, we’ve helped shape the policy recommendations.  

“We’re proud to have been involved in supporting the Casey Commission’s work, providing evidence, supporting statements and ensuring the voices and experiences of people with MND have shaped the Commission’s thinking from the start.

We’re heartened to see Baroness Casey has taken notice and highlighted within her recommendations the introduction of a fast-track passport enabling people with MND to secure the care and support they need.  

A fast-track passport is exactly the kind of solution that could make a real difference to people’s quality of life at a really difficult time.

We will be keeping the pressure on Government to move fast and implement the Casey Commission’s recommendations for the sake of people with MND now and those who will be diagnosed in the future.”

Tanya Curry, Chief Executive of the MND Association