Latest News
Campaigns
Video to Wes Streeting sees emotional plea for tofersen access
11 August 2025
Seckin McGuirk, who is living with MND, urges the Health Secretary, Wes Streeting MP to take action
News
Tofersen receives MHRA approval
28 July 2025
The drug has now been granted marketing authorisation by the Medicines and Healthcare products Regulatory Agency (MHRA)
News
Our day of action and incredible ice sculpture in Westminster
24 July 2025
For the 2% of people with MND whose disease is caused by a change to their SOD1 gene, tofersen is a lifesaving treatment that can significantly slow or even pause the progression of their symptoms
News
First nurse recruited into MND Association’s Research Nurse Network
24 July 2025
The ambitious £7.2 million Research Nurse Network will give more people diagnosed with motor neurone disease (MND) the opportunity to take part in vital research
News
Early career researchers maximise opportunities at MND EnCouRage 2025
23 July 2025
Once again, the MND Association welcomed a cohort of early career researchers along with and people affected by MND to our annual MND EnCouRage event
Association News
Association's £4.1 million house draw partnership boost will kickstart a revolution in MND research
12 July 2025
The money raised will support the development of the Association's Research Nurse Network
Association News
Dr Michael Hope: A tribute
9 July 2025
Tributes have been paid to Michael Hope who died recently
News
MND Association research investment reaches record high
3 July 2025
The MND Association is funding more research than ever before, underlining our ongoing commitment to funding world-class research to drive forward our understanding and treatment of MND
News
MND Association response to the NHS 10 Year Plan
3 July 2025
MND Association response to the NHS 10 Year Plan