Understanding the experiences of the LGBTQAI+ community

The MND Together study is looking into the coordination of care from various healthcare professionals for people with MND. The researchers are conducting workshops to understand how to design and run the study. 

The researchers would like to engage with members of the LGBTQAI+ community to explore their experiences of accessing healthcare and engaging with health research. Their goal is to work collaboratively with communities to identify and overcome barriers which may lead to them being under-represented in health research and therefore under-served in the healthcare setting. These findings will inform their ongoing research with people living with MND.

How will this study help people with and affected by MND now and/or in the future?

This work will help the researchers understand how to design and run the MND-Together study, which examines care coordination for people with MND. They want to understand the barriers to accessing healthcare and research for underserved communities, with a focus on improving the accessibility of healthcare and research for people with MND.