The Cambridgeshire Branch of the MND Association offers support to all those in the county and surrounding areas who are affected by Motor Neurone Disease. This includes their partners, carers, relatives and friends.
We have volunteer trained Care Service Navigators and Association Visitors attached to the Branch who have personal and direct contact with those living with MND. They offer support, help, and guidance to those living with MND and their families. They can help with navigating the way through the health and social care system.
We may purchase or contribute towards the cost of specific equipment where it is not available locally from the NHS or other statutory agencies, or where there would be an inappropriate delay in obtaining it, contribute to the rental of or adaptations to equipment to match individual needs, pay for professional counselling for people living with MND and their carers or contribute towards the cost of holiday and respite breaks which can be hugely beneficial to the family. We arrange taxis with wheelchair access to enable people to attend our regular branch social afternoons or to attend hospital appointments etc.
The Branch is entirely self-funding and run by volunteers, relying on income from fund raising events and sponsored activities or on donations from events organised by clubs, pubs and individuals.
If you are newly diagnosed or would like to talk to someone about MND please contact MND Connect first.
The Association's Helpline offers information and support to people affected by the disease.
Cambridgeshire Branch Officers and Committee
|Chair||Mrs Cynthia George||18, Over Road, Willingham, Cambridge CB24 5EU
Tel: 01954 202095
Mobile: 07515 534430
|Secretary||Mrs Maire Collins||52 Lambs Lane, Cottenham, Cambridge, CB24 8TA
Tel: 01954 200873
|Treasurer||Mr Brian Smith||5 Churchyard, Mildenhall, Bury St Edmunds, IP28 7EE Tel: 07711 206452 Email: firstname.lastname@example.org|
|Branch contact -
General local enquiries
|Mrs Cynthia George||Tel: 01954 202095
Mobile: 07515 534430
|Branch Newsletter Editor||Mr Anthony Flynn||Email: email@example.com|
|Webmaster||Mr David Griffiths||Email: firstname.lastname@example.org|
||VACANT||Could you join the branch as our Fundraising Coordinator? Contact the Branch Chair to find out more.|
|Financial Support Requests
||Mrs Maire Collins||See above|
|Additional Committee Members||Mrs Veronica Angus||Mrs Pam Wilkie|
AVs and CSNs
Brenda Parkes – Care Services Navigator
Prior to retirement, I worked as a community Occupational Therapist with the Physical Disability Team in south Lincolnshire. I initially joined MNDA as an Association Visitor in Peterborough/Cambridgeshire and then later became a Care Services Navigator. In this role I try to "join the dots up" with any of the services the person with MND might need at the time. Because of the complexities of MND, this can be quite a challenge - and especially since March 2020.
I am the longest serving member of the Cambs team. I joined 19 years ago when I retired as a Speech and Language Therapist at Peterborough District Hospital. I have served as a Committee Member, Association Visitor and AV Co-ordinator and found it all very fulfilling. Recently, I have reduced my workload but still support several families.
I spent my working life as a teacher and my husband was a civil engineer. We worked in many African countries for over 15 years. Sadly, my husband was diagnosed with MND in 2002 at the age of 51. He died six and a half years later.
It was a challenging time with lots of 'downs' but many 'ups'. The support of so many people at this time was amazing. I learnt so much through these years about the illness and also about surviving the illness and making the most of life. I think it was my husband who suggested I became a volunteer. He would have written me a good reference I think!!
So nearly 10 years later I am still an Association Visitor. I have met inspirational people. It can be difficult but generally very rewarding. Working with the 'MND Association and volunteer family' becomes addictive! We would love some more volunteers though.
Pam Wilkie has been a volunteer with the MND Association for ten years. Professionally she had been a paediatric Physiotherapist specialising in neuro-developmental delay. Her other main interest was the access of sports for children with disabilities. Since her retirement she has focussed on volunteering for MND as a member of her close family had been diagnosed with MND.
Area Support Co-ordinator (ASC)
ASCs provide support, information and guidance to branches and groups and individual volunteers to enable them to increase capacity and develop services locally. They run induction and development workshops, as well as bring groups of volunteers together to network and share best practice. They also develop new volunteering opportunities both for individuals and by the establishment of new groups.
ASCs also work proactively with statutory, voluntary and independent sector providers to promote and influence provision of timely and equitable access to a co-ordinated network of care for people with MND and their carers that meets our standards of care. They provide support to AVs on an individual and group basis, as well as identifying and delivering development opportunities for AVs.
Contact our ASC:
Phone: 01604 800620