Charlotte’s just 30. Diagnosed with MND two years ago, she’s struggling to adjust to her new reality.
Like most people with MND, she needs major changes to her home. Things like a ramp and a wet room.
There is funding available from local councils to adapt homes – called the Disabled Facilities Grant (DFG).
But the DFG process takes far too long. On average, it takes about one year to get funding for vital housing adaptations.
With a third of people dying within a year of diagnosis, this is unacceptable.
That's why we're calling on every council to commit to completing all approved large adaptations within four-and-a-half months
Ask your local councillors to fast-track accessible housing for people with MND
How you can help
For supporters
Ask your local councillors to fast-track accessible housing for people with MND.
Email your councillors using our template message
We’ve put together a handy Action Guide for you.
For councillors
Please submit a motion at full council calling for your Local Authority to introduce a fast-track process for the DFG, or (if they already have one in place) asking them to formalise and improve the fast-track process.
For further information or to discuss how you can support people with MND in your local area, please email the MND Association Campaigns Team on campaigns@mndassociation.org
For MPs
Use our template letter to ask authorities in your area to pass a motion supporting improved housing provision for people with MND.
For further information or to discuss how you can support people with MND in your local area, please email the MND Association Campaigns Team on campaigns@mndassociation.org
Read our report on accessible housing
Learn more about the housing barriers faced by people with MND, and the changes needed to address them.