Research news
News

Statement in response to NICE decision regarding tofersen

13 March 2024
Last week we heard the disappointing news that NICE has confirmed its decision to appraise the drug tofersen through the Single Technology Appraisal (STA) route
News

Spring budget 2024 response

6 March 2024
The Association responds to the 2024 spring budget announcement.
MND Connect
News

Changes to MND Connect

4 March 2024
Changes to MND Connect
News

‘Heartfelt thank you’ to rugby fans for £8.2million fundraising effort

29 February 2024
‘Heartfelt thank you’ to rugby fans for £8.2million fundraising effort
Research news
News

MND charities update on MIROCALS data

27 February 2024
We have today written a joint letter with MND Scotland and My Name’5 Doddie Foundation to regulators to alert them to the imminent publication of data from the MIROCALS trial
Symp Basel
News

Announcing the MND Association’s 35th International Symposium and MND EnCouRage 2024 for early career researchers

27 February 2024
Following the success of the 34th International Symposium on ALS/MND in Basel, Switzerland, planning is well underway for the 35th Symposium, this year to be held in Montreal from 6-8 December.
Research news
News

Tofersen receives positive opinion from European Medicines Agency Committee

23 February 2024
We welcome the positive opinion on tofersen (Qalsody) by the CHMP of the European Medicines Agency (EMA) and what this means for people with the SOD1 type MND in Europe
Riluzole update
News

Update on supplies of riluzole

21 February 2024
Latest update on supplies of riluzole
Woman in a lab coat looking through a microscope
News

Celebrating inspiring MND researchers on International Day of Women and Girls in Science

11 February 2024
Association celebrates International Women in Science Day 2024