Care support from external and social services covers a wide span of assistance. You can find out more about support for carers in our comprehensive guide:
This can be downloaded in full or you can look at just the section you need. If preferred, we have a short booklet for carers: Caring and MND: quick guide.
The full guide and the quick guide can also be ordered in print from our helpline, MND Connect. The team can also help you locate appropriate services.
What should you expect from your care?
Our pocket sized booklet can support discussions with health and social care professionals. This may help lead to better outcomes for treatment and care with MND and contains the main points from the NICE guideline on motor neurone disease. This includes help for carers. NICE guidelines are produced by the National Institute of Health and Care Excellence, providing recommendations to help professionals support specific conditions, such as MND.