The Annual Stephen Hawking MND Lectures were launched 2017 – and are now and established and important part of the Association’s calendar.
The aim of the Annual Stephen Hawking MND Lecture is to bring current research in motor neurone disease to members of the multidisciplinary team and demonstrate how this might feed into their practice. Lectures are led by experts in their field and these engaging and popular events attract hundreds of health and social care professionals. The lectures are held in the evening and online to make attendance as open as possible. And we have had delegates join from across Europe.
Our thanks to the Stephen Hawking Foundation for their funding support.
2024 Stephen Hawking MND Lecture:
Motor neurone disease – the importance of psychological care
Acceptance and Commitment Therapy (ACT) – a proven intervention that supports quality of life.
This year's lecture will explore the psychological impact of MND, with a focus on Acceptance and Commitment Therapy (ACT), to improve quality of life in MND, and will take place online on Tuesday 12 November, from 6pm to 8pm.
The session will be led by Rebecca Gould, a Professor of Psychological Therapies in the Division of Psychiatry at University College London and an Honorary Clinical Psychologist in Camden and Islington NHS Foundation Trust.
Her main research interests are in developing and evaluating psychological interventions, particularly third-wave therapies such as Acceptance and Commitment Therapy (ACT) and mindfulness-based interventions, for people living with and affected by physical and mental health conditions. She was chief investigator on a recent clinical trial examining the clinical and cost-effectiveness of ACT for improving quality of life in comparison to multidisciplinary usual care for people living with motor neurone disease.
She was also involved in the development of an online ACT intervention for caregivers of people living with dementia, which is currently being evaluated in a clinical trial. She is currently leading on a clinical trial of ACT for older people with treatment-resistant generalised anxiety disorder, as well as leading on the development of an ACT intervention for people living with Parkinson's disease and anxiety.
Objectives:
- to examine the need for psychological support in people living with MND
- to provide a brief overview of psychological therapies for people living with MND
- to introduce and explore the relevant recommendations relating to psychological support within NICE Guideline NG42
- to outline the results of the groundbreaking COMMEND research study into Acceptance and Commitment Therapy (ACT), a form of psychological therapy, for people living with MND
- to examine what ACT is
- to explore how ACT principles might be applied in AHP practice.
By the end of the lecture attendees will have:
- a better understanding of the importance of psychological support for people living with MND
- been introduced to the principles of ACT and its particular relevance to people living with MND
- an increased awareness of how ACT principles can be applied to their own practice.
Previous lectures
You can watch videos of previous lectures below:
- 2023 MND – Planning ahead for effective person-centred care
Bee Wee CBE, Consultant in Palliative Medicine at Sobell House and Katharine House Hospice, Oxford University Hospitals NHS Foundation Trust and Associate Professor at University of Oxford and Non Executive Director of the National Institute for Health and Care Excellence. - 2022 Communication in MND: How can we have better conversations?
Professor Steven Bloch, (PhD, MRCSLT, SFHEA), Professor of Communication and Social Interaction in the Division of Psychology and Language Sciences, and University College London, Vice Dean Education, Faculty of Brain Sciences, University College London. - 2021 MND - Delivering person centred care at end of life
Dr Idris Baker, Consultant in Palliative Care, Ty Olwen Hospice, Morriston Hospital, Swansea and National Clinical Lead for palliative and end of life care in Wales. - 2020 Effective MND respiratory care
Dr Rónan Astin BA Hons MRCP PhD Consultant in Respiratory and Ventilation Medicine, at University College London Hospital (UCLH). - 2019 Nutrition in MND – could getting it right make a difference?
Professor Christopher McDermott, (MBChB, FRCP, PhD) Head of Department and Professor of Translational Neurology, Sheffield Institute for Translational Neuroscience (SITraN). - 2018 Cognitive and behavioural symptoms in MND: defining the Amyotrophic Lateral Sclerosis Frontotemporal Dementia (ALSFTD) spectrum
Professor Eneida Mioshi, Chair of Dementia Care, School of Health Sciences, University of East Anglia.
