AGM 2026

As a charity, we have always worked to support people affected by MND in England, Wales, and Northern Ireland, but not Scotland.  

We do already fund research in Scotland and over the last few months, we have been considering whether, as a charity, we should extend our work, so that people affected by MND in Scotland have access to the same level of support services we already provide to people in England, Wales and Northern Ireland.  

Our Board’s focus is on the interests of those with MND. It has therefore taken the view that we should apply to become a UK wide charity.  

For this to happen for the MND community, we would need to change our charity articles – which provide the legal framework we operate in – and this can only be done with the approval of our membership. So, we will be putting that recommendation to our members at our Annual General Meeting on 8 July and asking them to vote on it.  

If our members say yes, we will apply for charity registration in Scotland and develop a plan to offer people in Scotland access to our services.  

To deliver our strategy, we work in partnership with many other charities, including MND Scotland. We value those relationships enormously and are committed to continuing to work in this way for people with MND.  

Our Board has given this matter serious consideration. If the vote is in favour and we are given the necessary regulatory approvals; we would want to discuss our future plans with partners. We are committed – should our members agree it is the right thing to do – to make every day matter for everyone affected by MND in the UK.  

Until our members vote at the AGM, nothing will change. We will continue to work hard, delivering our services and support to people affected by MND in England, Wales, and Northern Ireland.

We will, of course, share the outcome of our members’ vote after our AGM.