9 July 2025 Association News
The Motor Neurone Disease Association is saddened by the death of our trustee, Dr Michael Hope last month at the age of 63.
Michael was diagnosed with motor neurone disease (MND) in 2023 – a disease that also took the life of his uncle. Like many others in the MND community, Michael’s journey to diagnosis was long and frustrating which motivated him to become a trustee for the Association. He was elected to the Board last year.
As a trustee, Michael was a highly respected and valued member of the team. Michael’s personal experience of MND and his career in the NHS meant his contributions were significant, as he was able to use his knowledge and understanding to maximise our impact and make improvements for others living with MND. Michael was generous with his time, becoming an integral part of our Care Services and Research Committee.
As Michael explained when he became a trustee: “I understand the difficulties for people living with MND and their carers. I’ve seen courage, bravery and perseverance which inspires me to stand to be of service to represent and speak for people affected by MND.”
Michael was also regular attendee and a well-liked member of the South and West Somerset Branch.
Our thoughts are with Michael’s family and friends.