17 June 2026 News

MND Care Centre and Network Day 2026

More than 150 people from MND Association-supported services came together for our annual Care Centre and Network Day in June – an event focused on strengthening collaborations and improving care for people with and affected by MND. 

The event brought together colleagues from all our MND Care Centres and Networks, including neurologists, care co-ordinators and research nurses. 

MND Research Nurse Katie Bowness, who is based in Preston, was attending for the first time. She said: “I found the experience invaluable. The relationships and connections we’ve built will make a real difference going forward.”

Nottingham MND Care Co-ordinator Erica Littleworth said: “Having dedicated time with like-minded colleagues is so uplifting. It helps us keep going in what can be a challenging role.”

This year’s theme: Exploring forms of support and care 

The day opened with welcomes from our Chief Executive Tanya Curry and Director of Services and Partnerships Sally Hughes, who discussed the importance of joined-up, seamless services to improve the experience of people affected by MND.  

A range of inspiring sessions throughout the day gave attendees the opportunity to discuss the latest developments in MND care, explore findings from recent research projects, learn from each other and share ideas on how to improve services in their areas. 

Topics included supporting carers, digital health and how research can be translated into everyday practice. 

The programme also included practical, expert-led sessions on key areas of care, including environmental controls, safeguarding and wellbeing at work. 

These sessions support professionals to build their knowledge and confidence, helping them respond to the complex and changing needs of people affected by MND. 

The day concluded with care co-ordinators sharing updates on their projects to continue improving care. 

This included piloting a new service evaluation tool, gRoWE, and developing a bowel management pathway, an issue which often indirectly affects people with MND. 

Delegates at the event

 

Making a difference together

Events like the Care Centre and Network Day play an important role in bringing professionals together to connect, share best practice and build their knowledge and skills.  

By working collaboratively, services can continue to improve - helping ensure everyone affected by MND receives the best possible care and support. 

Our Head of Information and Professional Development Jennifer Bedford said: “The Care Centre and Network Day was a fantastic success, with collaborative knowledge sharing, inspiring conversations and valuable networking creating real energy, strengthening connections and helping shape even better care for people affected by MND.”

Throughout the year, we run various events to help professionals continue develop their practice and support people affected by MND.  

Find out more here