Privacy Policy

What this privacy policy covers

The MND Association is committed to protecting your personal information and being transparent about what information we hold, whether you are a donor, volunteer, shopper, campaigner or a person living with or affected by MND that we support.

Developing a better understanding of our supporters through their personal data allows us to fundraise more effectively, which ultimately helps us move towards our vision of a world free from MND.  We have made improvements to this policy so that openness is at the core of what we do.

The purpose of this policy is to give you a clear explanation about how the MND Association and its subsidiary and branches and groups use the personal information you provide to us and that we collect, whether online, via phone, email, in letters or in any other correspondence or from third parties.

We ensure that we use your information in accordance with all applicable laws concerning the protection of personal information and the fundraising code of practice.  This policy explains:

  • What information the MND Association may collect about you
  • How we will use that information
  • Whether we disclose your details to anyone else
  • Your choices regarding the information you provide to us

If you have any queries about this privacy policy please contact the Senior Information Risk Owner (SIRO) at Motor Neurone Disease Association, Francis Crick House, 6 Summerhouse Road, Moulton Park, Northampton, NN3 6BJ, telephone us on 01604 250505 or email

Page last updated: 16/03/2022

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262