Experiences of grief, loss and hope in MND
While the physical effects of MND are well recognised, little research has focused on how people living with MND experience emotional issues such as grief, loss and hope.
This study aims to better understand how people living with MND experience and make sense of grief, loss and hope following their diagnosis, and what kinds of psychological support they feel would be helpful.
How will this study help people with and affected by MND now and/or in the future?
The researchers hope that the findings of this study will help to inform future psychological support services for people with MND, improving quality of life.
Taking Part
What does taking part involve?
People who choose to take part will be asked to take part in an interview lasting approximately 1 hour. Interviews can be conducted online or in the participant’s homes, or by email if preferred. Breaks can be taken as needed, and interview questions can be sent in advance if requested.
Participants will be offered a written summary of their interview so they can check that it accurately reflects their views.
Who can take part?
People living with MND, who are over the age of 18.
How can I take part?
If you are interested in taking part or would like more information about the study, please contact Cat Taylor, at ctaylor24@sheffield.ac.uk
Study location
UK-wide
Funding
NA