Beyond the Swallow: Investigating the impact of swallowing difficulties on caregivers and identifying support needs
Swallowing difficulties, also called dysphagia, is often seen in people living with MND. The researchers would like to carry out interviews to better understand the experiences of people who care for someone with dysphagia. The researchers would like to identify practical challenges faced by carers, and what support and training they feel is currently lacking. The study hopes to identify gaps in current healthcare provision and propose ways to improve these services.
How will this study help people with and affected by MND now and/or in the future?
The researchers hope that the results of this study will provide a clearer understanding of the varied experiences of people who care for someone with swallowing difficulties. They hope to identify ways to improve training and support systems for carers and families.
Taking Part
What does taking part involve?
People who take part will be asked to take part in an online interview on Microsoft Teams, lasting around 45-60 minutes. Participants will be asked around ten questions about their experiences of supporting someone with swallowing difficulties. The interview will be recorded.
Who can take part?
Family members and carers who provide care for a person with MND who also experiences swallowing difficulties, and who have been providing care for more than 4 months
How can I take part?
If you are interested in taking part in an interview, you can book an interview time that is convenient to you. If you would like more information about the study, please email Rutaba Faisal, at rutaba.faisal@stu.mmu.ac.uk
Study location
UK-wide
Funding
NA