Using computer models to help predict care needs in MND

Motor neuron disease (MND) is a condition that changes over time, affecting how a person moves, speaks, and breathes. These changes mean that people living with MND often have to make important choices about their future care, such when to start using a wheelchair or a feeding tube.

Researchers at the University of Sheffield have created computer models to help predict when these changes might happen for an individual. These are called personalised predictions. This study aims to find out how people with MND feel about this kind of information. The research will look at how and when these predictions should be shared by doctors, what support is needed to make these conversations easier for people with MND and to help them make decisions about their future care.

You can read more about this project on our research we fund webpage.

How will this study help people with and affected by MND now and/or in the future?

The researchers hope that this study will help to inform how healthcare professionals communicate about MND and help people with MND and their families plan for the future.