Rally around people affected by MND this winter

Lets all rally around to support families facing MND this winter. 

This time of year, with it's many festivities, can be particularly challenging for families affected by MND. That's why we need your help. Together we can rally around anyone who reaches out for support.  It's people like you who make many of our services possible. 

Karen's mum Pat was diagnosed with MND in 2024. A very close family, their household is also a busy one with three generations all living under one roof.  Karen's son Theo is 10 years old. 

"My son, has really been at the heart of all our concerns, since he sees everything first-hand with my mum living here. Everyone's been so thoughtful about making sure he’s doing okay. Living with her just means there’s no sudden surprise or shock for him. He’s seeing everything unfold gradually. Theo asked if nanny was going to get better. We had to say, ‘no, she’s not going to get better.’

When Pat received her MND diagnosis the whole family were devastated. Karen said she felt helpless because she couldn't make it better. But there was something she could do, she picked up the phone and made that first call. 

"The upset turned to strength. I thought, ‘I can't sit and be sad, I can't fix it, but what can I do to make it better?’ It was important to me we were prepared because you don't know how or how quickly MND is going to progress. So I rang the MND Association's helpline, MND Connect. Through their advice we were able to get things ready. They really, really helped us be pragmatic."

Please rally around and donate this festive season, so MND Connect can answer another family’s call for help.

Donate now 

You can read more about Karen's family, their experience of MND, and the support they've found helped here. 

Below you can find out more information about the services available through the MND Association.