I have been associated with the MND Association for over 30 years, as a supporter and volunteer. I feel privileged to be elected as a trustee of the Association.
In terms of my professional background I began my early career as a nurse, subsequently moving into management roles and in more recent years as Chief Executive of a hospice. My work has always been particularly focused on palliative and end-of-life care. I am currently working in the NHS, supporting system changes to ensure people at the end of their lives can access quality services. I am fortunate that my career has given me insight into how people access services and the challenges this poses.
Since the death of my mother-in-law who had MND, I have been committed to the Association and the amazing support it gives to people with the disease, their families and friends. As a home visitor for 15 years I have seen first-hand what a difference this makes to people’s lives.
I am keen to use my experience to support the MND Association to further its research, with the aim of finding a treatment and, hopefully one day, a cure.