Colin is living with Kennedy’s disease and aged 72. His wife Georgina is his main carer. Colin self-diagnosed in 1998 as he was already aware of Kennedy’s disease being in the family. Colin focuses on mental health, “But today is the only day that counts…Yesterday's gone. Tomorrow if it gets here…Live for today. Plan for tomorrow. But live today.”
See Colin and Georgina's interviews below.
1. Early signs and diagnosis
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2. Access to healthcare
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3. Communicating
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4. Managing symptoms
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5. Emotional and psychological support
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6. Social care
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7. Equipment and adaptations
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8. Carer and family support
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9. Genetic testing
Page last updated: 10 April 2026
Next full review: April 2027