Please see the drop down options below for the publication dates of our resources. This can help you check if you have the most up to date copy. Each entry shows:
Title of resource (links to publication when clicked)
Last revision date (month and year)
Next revision date (month and year)
Version number (this show if any updates have been made since the last revision date)
Guides and introductory information
MND: How to find out more
11/18
11/21
2
What you should expect from your care (NICE pocket guide)
10/21
10/24
1
Living with MND
07/19
07/22
2
Understanding my needs (Interactive)
12/18
12/21
1
Understanding my needs
12/18
12/21
1
MND Checklist (Interactive)
12/18
12/21
1
MND Checklist
12/18
12/21
1
An easy read guide to motor neurone disease
11/20
11/23
1
An introduction to MND
03/22
03/25
1
Caring and MND: quick guide
03/22
03/25
1
Caring and MND: support for you
12/21
12/24
1
When someone close has MND: a workbook for children aged four to ten
Only available as a printed resource - for details see our resources for families children and carers on our information page.
June 2020
June 2023
1
So what is MND anyway?
12/21
12/24
1
Making the most of life with MND
11/21
11/24
1
Eating and drinking with motor neurone disease (MND)
12/20
12/23
1
End of life: a guide for people with MND
03/21
03/24
1
Finding your way with bereavement
04/22
04/25
1
Telling people about MND
06/20
06/23
2
Emotional and psychological support
06/20
06/23
3
Changes to thinking and behaviour with MND
06/20
06/23
2
Information sheets
1A - About the NICE guideline on MND
July 2022
July 2025
1
1B - Health information in other languages and formats
12/21
12/24
1
1C - Where can I find the information I need?
11/21
11/24
2
1D - How we use your information
03/21
03/24
1
2B – Kennedy’s disease
03/22
03/25
1
2C – Primary lateral sclerosis
12/20
12/23
1
2D - Progressive muscular atrophy
07/20
07/23
1
3A – MND care centres and networks
03/21
03/24
1
3D - Hospice and palliative care
12/20
12/23
1
5A – Riluzole
June 2023
June 2026
1
6A – Physiotherapy
12/19
12/22
3
6B – Complementary therapies
03/21
03/24
2
6C - Managing pain
May 2022
May 2025
1
7A – Swallowing difficulties
09/20
09/23
2
7B – Tube feeding
August 2022
August 2025
1
7C - Speech and communication support
February 2023
February 2026
1
7D - Voice banking and message banking
June 2023
June 2026
1
8A – Support for breathing problems
July 2022
July 2025
1
8B – Ventilation for motor neurone disease
July 2022
July 2025
1
8C - Withdrawal of ventilation with MND
11/21
11/24
1
8D - Air travel and ventilation for motor neurone disease
July 2022
July 2025
1
10A – Benefits and entitlements
June 2023
May 2024
1
10B – What is social care?
March 2023
March 2026
1
10C – Disabled Facilities Grants
11/21
11/24
1
10D – NHS Continuing Healthcare
12/19
12/22
2
10E – Work and motor neurone disease
03/21
03/24
2
10F – Personal health budgets
October 2022
October 2025
1
10G - Support for families with children
12/20
12/23
2
11C - Equipment and wheelchairs
03/22
03/25
1
11E - Environmental controls
03/22
03/25
1
14A – Advance Decision to Refuse Treatment (ADRT) and advance care planning
06/21
06/24
1
Page last updated: October 2022
Next review: August 2024