Events from this branch

  • Walk the Wight 2024
    Coming soon
    12th May 2024

    Walk the Wight

    Walk the Wight 

    12th May

    Peter Wheeler will again be running the Wight.

    Peter's Just Giving Page:

    https://www.justgiving.com/fundraising/roowheeler?fbclid=IwAR2id4GyDOBP6IQMAuJRo-PfNdb_Ej4AKn6YYMBGADVOZq4evBRWFxuJJOk

    Walk the Wight, Isle of Wight
  • John Cheverton Centre
    Next date: 16th May 2024, 2:00pm

    Support Group

    Please join us for our monthly support group.

    This is a group for People living with and affected by MND

    It's an opportunity to meet others on a similar journey in a safe and informal setting.

    On hand our our trained support volunteers to guide you on the support we can offer.

    All refreshments are provided and sometimes a cuppa and a chat or listening to others can improve well-being.

    Don't let transport be a barrier as we can offer funding for this through our Quality of life grants on the Main website.

    John Cheverton Centre, Halberry Ln, Newport PO30 2ER
  • Jack Up Events Presents Ticket to Ryde 2024
    25th May 2024

    Jack Up Events Presents - Ticket to Ryde

    JackUp events are raising money for MND during 2024 and here are a few events for you to come and see us:
     
    Ticket to Ryde 25-26 May, Eastern Gardens - Ryde Seafront - Free community event.
     
    Jack Up Summer Party - 10 - 11th August - Retro Staycations - Ryde - Boutique mini-fest/outdoor summer party celebration.
     
    Ticket to Ryde - 24 - 25 August - Eastern Gardens - Ryde seafront - Free community event
     
    Wight Buggin' - 13-15 September - Retro Staycations - Ryde-VW camp-out/family friendly car show with live music and stalls.

    Eastern Gardens, Ryde Seafront
  • Logo Paultons Park
    25th July 2024, 10:30am

    Paultons Park Family day

    Please join us for our Family Day.

    For those with and affected by MND

    A day to make memories 

    We will be funding up to 4 tickets per family but you must register with [email protected] by May 31st, 2024.

    Ferry Travel will also be funded by your local Branch

    We would love to welcome you on the day

    We have an accessible room for breaks or just to dump some bags which will be manned all day.

    Paultons Park, Ower, Romsey SO51 6AL
  • Jack Up Summer Party - Isle of Wight
    10th August 2024, 11:00am

    Jack Up Summer Party

    Jack Up Summer Party

    10 - 11th August 

    Boutique mini-fest/outdoor summer party celebration.

    Retro Staycations, Hazelgrove Farm, Ryde, Isle of Wight
  • Jack Up Events Presents Ticket to Ryde 2024
    24th August 2024

    Jack Up Events Presents - Ticket to Ryde

    Ticket to Ryde

    24 - 25 August

    Free community event

    Eastern Gardens, Ryde Seafront
  • Wight Buggin' Event Ryde Isle of Wight
    13th September 2024, 3:00pm

    Wight Buggin'

    Wight Buggin'

    13-15 September

    VW camp-out/family friendly car show with live music and stalls.

    Retro Staycations, Ashey Road, Ryde, Isle of Wight

Support the group

Welcome to the Isle of Wight Branch 

The branch is run entirely by volunteers and aims to provide the best possible support to local people with MND, their families, and carers. If you know someone that may be interested in joining the Branch? Please contact [email protected]

Please check out our Facebook page at: www.facebook.com/MNDAIsleofWight

Text to Donate: Text MNDWIGHT to 70085 to donate £5

To donate more please text MNDWIGHT and the amount to 70085
The maximum amount is £20

Thank you for your donation 

If you would like a certificate of appreciation for your donation please email [email protected]

Meet the Branch

Christopher Lund - Branch chair and Association Visitor 

Anne Glentworth - Treasurer

Doreen Gant - Lead Fundraiser/Interim Admin Assistant

Ali Griffiths - Campaigns Contact

Linda Griffiths - Acknowledgements

Tamara Rice  - Webmaster/Social media Lead

Carl Jacobs - Fundraiser/Committee member

Support Groups

The MND Support Group for 2023/2024 will be held at the John Cheverton Centre in the Multi-Function Room between 2.00 p.m. and 4.00 p.m.

The third Thursday of each month

Hosted by our trained Volunteer Chris 

South East Region Online Groups on Zoom

What:              Online group for carers led by Lisa Burnard (Area Support Co-ordinator)

When:              First Tuesday of the Month - 11 am - 12:00 pm

Description:   “A virtual cuppa and friendly chat with other carers in the South East”

Contact:         [email protected]

 

What:              PMA-PLS support group led by Jo Campbell, Jo Cunnah and Ellen Murdoch*

When:             Second Monday of each month 5 pm- 6 pm 

Description:   “Meet up with other people living with or affected by PLS or PMA”

Contact:         [email protected]

 

What:             PILOT GROUP MND Veterans group led by Dawn Pond (ASC)

When:            Fourth Wednesday of each month from 2:30 pm-3:30 pm 

Description:   “A different type of support. Not just about MND but about you, your background, and common interests”

Contact:         [email protected]

 

What:             Online group for carers led by Justine Cox (Area Support Co-ordinator)

When:            Last Wednesday of each month 6.30 pm-7.30 pm 

Description:   “Looking after you – an evening virtual support group”

Contact:         [email protected]

 

What:              South East region Peer to Peer support group led by Dawn Pond (ASC) 

When:             Third Tuesday of each month - 11:00 - 12:30 

Description:   “Regional group, the opportunity to meet others with MND across the region”

Contact:         [email protected]

 

Carers of people with a Tracheotomy and MND online group

Tuesday 20th February at 6.30 pm

Tuesday 19th March at 2 pm

Tuesday 23rd April at 6.30 pm

Contact: [email protected] for more information

 

If you are a person affected by MND and need support, please contact MND Connect on 0808 802 6262.
For Free benefits advice please contact 0808 901 0620

 

Coming up

17th March 2024 - 19th Annual Antiques & Collectors Fair, Northwood House, Ward Avenue, Cowes.
 
12th May 2024 - Walk the Wight - Peter Wheeler will again be running the Wight. 
 
25th-26th May 2024 - Ticket to Ryde - Eastern Gardens, Ryde Seafront - Free community event.
 
10th-11th August 2024 - Jack Up Summer Party - Retro Staycations, Ryde - Boutique mini-fest/outdoor summer party celebration.
 
24th-25th August 2024 - Ticket to Ryde - Eastern Gardens, Ryde seafront - Free community event. 
 
13th-15th September 2024 - Wight Buggin' - Retro Staycations, Ryde - VW camp-out/family friendly car show with live music and stalls.
 

Latest News

Please click on the links below for more information

Research Page: Research

Campaigns Get involved: Campaigns

Events/Fundraising

On Saturday 22nd July 2023 we held a ride on a steam train event at Havenstreet. This was enjoyed by People living with and affected by MND and their families.

 

Although it was a fairly quiet day, people were very generous and we were delighted to have raised £116.63 for the charity. Thank you to Sarah Simpson, the community champion at Asda in Newport for allowing us to collect in the foyer.

Isle of wight events

Committee members of the IOW branch of the Motor Neurone Disease (MND) Association were last night presented with a cheque for £2000 by Vic Mann and Hillary Searle from the Cycle Island Community Interest Company.  
Nearly 3000 riders took part in a Randonee on the 30th April which raised a total of £14000 which has been divided amongst various island charities. 
The MND branch are extremely grateful to be amongst the chosen charities and say this will really help local people living with MND and their carers.

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