Rob Burrow MBE

"First it comes for your voice. Then it takes your legs. It tries to rob you of your breath. But it can't sap your spirit"


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Former Leeds Rhinos scrum-half Rob Burrow MBE was diagnosed with motor neurone disease in December 2019, just two years after ending his playing career by captaining Leeds to a record-extending eighth Super League Grand Final.

The MND Association Patron is one of an estimated 5,000 adults in the UK currently living with motor neurone disease. Every day, an average of six people are diagnosed with MND. The MND Association focuses on improving access to care, funding research, and campaigning for those people living with, or affected by, MND.

Will you join in the fight against MND?

A gift from you today will not only help to support families living with MND, like Rob’s, but will also fund vital research in the search for a cure. With your help, we hope to save other families from the heartache of a motor neurone disease diagnosis in the future.

Rob Burrow Leeds Marathon

A new marathon to honour rugby league legend Rob Burrow MBE will launch next year, with the MND Association named as a charity partner.

The Rob Burrow Leeds Marathon will take place on Sunday 14 May 2023 and will start and finish at the iconic Headingley Stadium, where Association Patron Rob accomplished some of his greatest sporting achievements.

There will be 7,777 places available, in honour of Rob’s iconic shirt number at Leeds Rhinos. Sign up to the Rob Burrow Leeds Marathon. 

The documentary Rob Burrow: My Year with MND narrated by BBC Breakfast presenter Sally Nugent shared Rob's journey since diagnosis. In the programme, Rob shows the same spirit that made him a hugely-admired rugby league star, as he campaigns selflessly to raise awareness of MND. The programme also followed Rob’s wife Lindsey as she completed the Three Peaks Challenge, and featured moving interviews with Rob, Lindsey, his parents and close friends - including former team-mates Kevin Sinfield and Barrie McDermott.

To Rob, and his family, thank you for bravely sharing your story, for raising awareness of MND, and for allowing the world to see how motor neurone disease affects thousands of families in the UK, every single day.

In recognition of their incredible efforts in support of the Motor Neurone Disease community, we are delighted to announce that both Rob Burrow MBE and Kevin Sinfield OBE have been invited to join the MND Association as patrons.

MND Association Chief Executive Sally Light said:
“The strength, courage and friendship shown by both men over the last 18 months has captured the heart of a nation, not just the MND community, and has resulted in a huge increase in awareness of motor neurone disease, and vital support for our work.

“It has been a privilege to work with them over the last 18 months and we are very much looking forward to developing that relationship in their new role as patrons.”

To make a donation by mobile, text MNDROB to 70085 to donate £7. Texts cost £7, plus one standard rate message.

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262