Rob Burrow MBE

"First it comes for your voice. Then it takes your legs. It tries to rob you of your breath. But it can't sap your spirit"

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Former Leeds Rhinos scrum-half Rob Burrow MBE was diagnosed with motor neurone disease in December 2019, just two years after ending his playing career by captaining Leeds to a record-extending eighth Super League Grand Final.

Now an MND Association Patron, Rob is one of an estimated 5,000 adults in the UK currently living with MND. Every day, an average of six people are diagnosed with MND. The MND Association focuses on improving access to care, funding research, and campaigning for people living with, or affected by, MND.

Will you join in the fight against MND?

A gift from you today will not only help to support families living with MND, like Rob’s, but will also fund vital research in the search for a cure. With your help, we hope to save other families from the heartache of an MND diagnosis in the future.

Kevin Sinfield Ultra 7 in 7 challenge

Rob has inspired so many people to join the fight against MND. In November 2022, former team mate and fellow Association patron Kevin Sinfield OBE will take on his third challenge raising money in Rob’s name. Following on from 7in7 – 7 marathons in 7 days in November 2020, a year later, MND Association Patron Kevin ran The Extra Mile – 101 miles, finishing at Headingley Stadium.

His latest challenge, Ultra 7in7 will see Kevin running from Murrayfield Stadium in Edinburgh to Old Trafford in Manchester in just 7 days – the equivalent of around 40 miles a day. Kevin starts the challenge on Sunday 13 November. You can donate and see updates of his progress on his Give as you Live donation page .

Broadcast in 2022, the BBC documentary Rob Burrow: Living with MND took an intimate look at Rob’s life with MND more than two years on from his diagnosis. The programme follows Rob on a trip to the swimming pool with wife Lindsey, cheering on his children at school sports day and an appointment with his neurologist. This is the second time Rob has generously allowed the cameras into his home to raise awareness, after sharing the first year after being diagnosed in the documentary Rob Burrow: My Year with MND, which was released in 2020. The powerful programme was shortlisted for a National Television Award in 2021.

Rob Burrow Leeds Marathon

A new marathon to honour rugby league legend Rob Burrow MBE will launch next year, with the MND Association named as a charity partner.

The Rob Burrow Leeds Marathon will take place on Sunday 14 May 2023 and will start and finish at the iconic Headingley Stadium, where Association Patron Rob accomplished some of his greatest sporting achievements.

There will be 7,777 places available, in honour of Rob’s iconic shirt number at Leeds Rhinos. Sign up to the Rob Burrow Leeds Marathon. 

To Rob, and his family, thank you for bravely sharing your story, for raising awareness of MND, and for allowing the world to see how motor neurone disease affects thousands of families in the UK, every single day.

To make a donation by mobile, text MNDROB to 70085 to donate £7. Texts cost £7, plus one standard rate message.

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For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262