Rob Burrow Mnd Association 2

Rob Burrow: My Year With MND

"First it comes for your voice. Then it takes your legs. It tries to rob you of your breath. But it can't sap your spirit"


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Former Leeds Rhinos scrum-half Rob Burrow was diagnosed with motor neurone disease in December 2019, just two years after ending his playing career by captaining Leeds to a record-extending eighth Super League Grand Final.

Rob is one of an estimated 5,000 adults in the UK currently living with motor neurone disease. Every day, an average of six people are diagnosed with MND. The MND Association focuses on improving access to care, funding research, and campaigning for those people living with, or affected by, MND.

Will you join in the fight against MND?

A gift from you today will not only help to support families living with MND, like Rob’s, but will also fund vital research in the search for a cure. With your help, we hope to save other families from the heartache of a motor neurone disease diagnosis in the future.

Earlier this year the documentary “Rob Burrow: My Year with MND” narrated by BBC Breakfast presenter Sally Nugent shared Rob’s journey since diagnosis. In the programme Rob shows the same spirit that made him a hugely-admired rugby league star, as he campaigns selflessly to raise awareness of MND. The programme also followed Robs wife Lindsey as she completed the Three Peaks Challenge, and featured moving interviews with Rob, Lindsey, his parents and close friends - including former team-mates Kevin Sinfield and Barrie McDermott.  

Rob’s children have also got involved in fundraising and raising awareness, by designing 4 Christmas cards that are available to buy from our online shop.

To Rob, and his family, thank you for bravely sharing your story, for raising awareness of MND, and for allowing the world to see how motor neurone disease affects thousands of families in the UK, every single day. 

To make a donation by mobile, text MNDROB to 70085 to donate £7. Texts cost £7, plus one standard rate message.

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262