10 February 2022 Campaigns

A campaigner who is living with motor neurone disease (MND) has received a Points of Light award from Prime Minister Boris Johnson following her involvement in the United to End MND campaign.

Emma Moss, a former deputy headteacher, was diagnosed with MND in 2018 at the age of 37.

As well as raising awareness of MND through her popular blog, Mummy with MND, Emma has been at the forefront of the United to End MND campaign which saw the Government announce it would invest £50 million over five years into targeted MND research.

Sally Light, Chief Executive of the Motor Neurone Disease Association, said:

I’m so delighted that Emma has been given this award. As part of the campaign to secure a new £50m Government investment in targeted MND research, Emma shared her experience of MND and how the disease has affected her and her family.

Through her blog and her campaigning work she has highlighted why we need this investment to find effective treatments and ultimately a cure for MND. We’re grateful to Emma and everyone living with MND who supports us in raising awareness of MND through campaigning and sharing their story.

Emma Moss said:

It’s an honour to be recognised as a Point of Light for my work within the MND Community. Motor Neurone Disease is a devastating terminal illness and when I was diagnosed at 37, I was horrified to learn that there was no treatment and no cure. I’ve been very lucky to work with an incredible team of patients and charities in order to secure a much needed £50 million pound investment for targeted MND research. I accept this award on behalf of everyone who is living with MND and thank them for their strength, bravery and determination.

With huge thanks to my family, particularly my darling daughter, who keeps me motivated and inspired. Together, we are united to end MND.

Read more on the Points of Light website