The United To End MND campaign brings together a coalition of people with MND, researchers, clinicians and charities in a call to Government to fund a virtual centre of excellence for MND research leading us towards treatments and cures.
Currently the UK government’s funding for targeted MND research has plateaued at around £3 million a year. That’s not enough.
United to End MND
Why now?
Research into the causes and potential treatments for MND has progressed, with current trials offering real promise. But this progress is largely dependent on sufficient levels of investment.
And research costs money. Currently funding for MND research from charities outstrips that from government. Without government support this vital progress is in danger of halting.
What is needed?
£50 million from the Government over five years would enable this virtual institute to provide the infrastructure needed for accelerating treatments for MND. It will bring together advances in both clinical and core science research.
The institute will make a real difference to MND research by:
- focussing on world-leading drug discovery and development
- developing a sustainable MND trials platform
- implementing a rigorous clinical research programme.
A virtual institute would follow established models in other fields. Under its guidance, the already highly collaborative MND research community would act as one team without needing to be under one roof.
For more information on the case for the institute please start with our briefing. We also have a further paper aimed at a research audience.
Who is involved?
Only by working together will we find a cure and treatments to give hope to people with MND.
That’s why people with MND, the MND Association, MND Scotland, the My Name’5 Doddie Foundation, researchers and clinicians are collaborating on this call for Government action. Some pharmaceutical companies have already expressed their support.
Are you in?
Soon we'll share our ideas for how you can support our call for more funding for MND research.
This will include:
- social media action, including an exciting video to share from Doddie Weir
- a petition to sign
- how to contact your local MP when the time is right.
Get involved
If you have any questions or ideas for the campaign, get in touch.
