News
New research partnership to support the search for MND treatments
19 March 2024
Researchers at the University of Nottingham are joining forces with Stand Against MND, the charity co-founded by Sam Perkins who has MND, and the MND Association, to carry out research
News
Statement in response to NICE decision regarding tofersen
13 March 2024
Last week we heard the disappointing news that NICE has confirmed its decision to appraise the drug tofersen through the Single Technology Appraisal (STA) route
News
Spring budget 2024 response
6 March 2024
The Association responds to the 2024 spring budget announcement.
News
Changes to MND Connect
4 March 2024
Changes to MND Connect
News
‘Heartfelt thank you’ to rugby fans for £8.2million fundraising effort
29 February 2024
‘Heartfelt thank you’ to rugby fans for £8.2million fundraising effort
News
MND charities update on MIROCALS data
27 February 2024
We have today written a joint letter with MND Scotland and My Name’5 Doddie Foundation to regulators to alert them to the imminent publication of data from the MIROCALS trial
News
Announcing the MND Association’s 35th International Symposium and MND EnCouRage 2024 for early career researchers
27 February 2024
Following the success of the 34th International Symposium on ALS/MND in Basel, Switzerland, planning is well underway for the 35th Symposium, this year to be held in Montreal from 6-8 December.
News
Tofersen receives positive opinion from European Medicines Agency Committee
23 February 2024
We welcome the positive opinion on tofersen (Qalsody) by the CHMP of the European Medicines Agency (EMA) and what this means for people with the SOD1 type MND in Europe
News
Update on supplies of riluzole
21 February 2024
Latest update on supplies of riluzole