Amelia

Meet Amelia...

After losing her father to MND, Amelia began volunteering for the Association raising awareness through social media. Despite her grief, volunteering helps Amelia feel connected to her dad while supporting people with and affected by MND through sharing engaging information and legislative updates on her local branches social media.

Amelia shared her volunteering experience with us in May 2026.

Although it's sometimes difficult, I do think it's helping me feel closer to my dad even now.

Hi, I'm Amelia and I'm the Social Media volunteer for the West London and Middlesex branch. 

I love a sport! Football and tennis are my favourites, but I've recently been indoctrinated into the world of rugby by some friends. I'm also very involved with my book club and help out with their socials. Travelling is another passion of mine - I want to visit every continent before I die (currently I have visited three out of seven)!

My father was diagnosed with MND in 2020 and passed away in 2022. 

After my dad passed away, I realised that I wanted to help out and give my time in some capacity to people living with MND and those affected by it. I began volunteering with the ALS Association branch in New York, and then when I moved to London I began helping with the MND Association.

Knowing that I'm doing something to make a difference for someone living with MND is one of the most rewarding parts of volunteering. Even though my dad has passed away, I still see him in everyone I meet at the MND Association. We're all striving to raise awareness about MND and work towards finding a cure. Even though I'm not a scientist or researcher or politician, I can still help out.

It definitely brings up a lot of grief for me. I wasn't in a place to volunteer while my dad was still alive, and I hold a lot of regret for not being able to do more when he was here. Although it's sometimes difficult, I do think it's helping me feel closer to my dad even now.

I like to make posts about new MND-related legislation. When many people think about MND, the scientific and medical aspects are at the forefront of the conversation, but the political side isn't something immediately thought of. Passing legislation can change the quality of life for someone living with MND: home care and medical funding, medicine and drug regulations, and benefit and welfare funding can all be affected by a change in legislation. By making posts about current pending legislation, I show how a small act (i.e. messaging your representative, filling out online forms, signing petitions, etc.) can have a huge impact for someone living with MND.

It's an incredible experience and I highly recommend it. There are ups and downs for sure, but at the end of the day it's a privilege to work for such a wonderful cause and give something back to people living with MND.