Scrap 6 Months campaign discussed in Parliament

Becky attends APPG meeting

Earlier this week the All-Party Parliamentary Group (APPG) on MND met in Parliament to discuss our Scrap 6 Months campaign on access to welfare benefits for people who are terminally ill.

At the meeting Becky Gatenby from Bradford gave an emotional speech about her father’s attempts to claim Universal Credit.  Becky spoke to a packed room of MPs and Peers about how her father had struggled with the welfare system. She finished her talk with a quote from him:

“It was degrading to feel that I had to beg for financial support from a system I had paid into most of my life. I felt abandoned and reduced to a number. The word terminal should be enough. It should not be about time as no one can guarantee how long the terminally ill will live, regardless of the prognosis. The criteria for the terminally ill needs to change before more people suffer at the hands of this system”.

The meeting was also the AGM of the APPG, and the following MPs have been elected to serve as an Officer:

Chair – Andrew Lewer MP (Conservative, Northampton South)

Vice-Chairs – Brendan Clarke-Smith MP (Conservative, Bassetlaw), Chris Evans MP (Labour, Islwyn), Christine Jardine MP (Lib Dem, Edinburgh West) and Mark Tami MP (Labour, Alyn and Deeside)

Secretary – Rosie Duffield (Labour, Canterbury)

The MND Association was appointed to act as the secretariat to the Group for another year.

APPG Meeting - Feb 2020

A record twenty-eight MPs and Peers attended the meeting:

List of MPs and Peers who attended

Peter Aldous MP – Waveney,
Kevin Brennan MP – Cardiff West,
Brendan Clarke-Smith MP – Bassetlaw,
Rosie Duffield MP – Canterbury,
Iain Duncan Smith MP – Chingford & Wood Green,
Mark Fletcher MP – Bolsover,
Mary Glindon MP – North Tyneside,
Nia Griffith MP – Llanelli,
Andrew Gwynne MP – Denton and Reddish,
Trudy Harrison MP – Copeland,
Sharon Hodgson MP (researcher) – Washington and Sunderland West,
Christine Jardine MP (researcher) – Edinburgh West,
Ruth Jones MP – Newport West,
Barbara Keeley MP – Worsley and Eccles South,
Clive Lewis MP – Norwich South,
Andrew Lewer MP – Northampton South,
Jerome Mayhew MP – Broadlands,
Steve McCabe MP – Birmingham Selly Oak,
Jessica Morden MP (researcher) – Newport East,
Stephanie Peacock MP – Barnsley East,
David Rutley MP – Macclesfield,
Amanda Solloway MP – Derby North,
Mark Tami MP – Alyn and Deeside,
Stephen Timms MP – East Ham,
Rosie Winterton MP – Doncaster Central


Lord Mackenzie of Culkein
Baroness Noakes
Lord Selkirk of Douglas

Thank you to all our supporters who emailed their MP about the meeting. A fantastic 1,300 of you took our e-action – another record!

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For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262