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Wales man with MND shares tofersen journey with Government panel

Mike Thomas, 61, spoke at the UK Neuro Forum on 10 September

Campaigning
News

CognoMND™: A digital tool to identify changes in thinking and behaviour

Take part in a research study to test CognoMND, a digital tool to identify changes in thinking and behaviour.

Research

ChiMND: Complex Homecare in MND

Take part in a research study to explore the role of homecare workers in supporting people with MND who have complex care needs

Research

ALS biomarker study

Find out about how collecting biological samples will help the search for biomarkers.

Research

Motor Neurone Disease Research Data Catalyst

Help to plan a programme to improve researchers’ access to MND research data

Research

DENIM trial: Delivering Effective Non-Invasive Ventilation in Motor Neuron Disease

Take part in a trial to improve delivery of non-invasive ventilation (NIV).

Research

ACORN: A C9orf72 National Study

This study aims to better understand C9orf72 related MND and FTD.

Research

TiM-R: a remote platform for MND research

Take part in a research survey to better understand the lived experiences of people with MND and communication aids.

Research

TONiC: quality of life in neurological conditions

TONiC (Trajectories of Outcome in Neurological Conditions) is the largest study in the UK examining the factors that influence quality of life in patients with…

Research

MND Register of England, Wales and Northern Ireland

Find out about joining the MND register, to help us better understand motor neurone disease

Research