Welcome to the Herefordshire and Worcestershire Group

The Group is run entirely by volunteers and aims to provide the best possible support to local people with MND, their families, and carers.

Latest News

For more information about the different events and activities organised by the Group in order to provide support, raise awareness, and fundraise on behalf of people living with MND, please contact us. Also, please take a look at our Group Facebook page and Just Giving page - links are at the bottom of this page

  • Mayor of Kidderminster presenting a cheque to Worcester Volunteer representatives, MNDA were their Charity of The Year. 

    To view the Photo, Click Here....

  • Members of the Ross on Wye Lions Club presenting a cheque for £1000 in memory of a dear friend and colleague who died with MND.

    Thank you to Colin and the team for your support.

    To view photo, Click here....

  • Honouring Christian Burton: A Legacy of Music, Courage, and Community

    In memory of Christian Burton, who passed away in August following a courageous two-year battle with Motor Neurone Disease (MND), an incredible £17,750 has been donated to support the Herefordshire & Worcestershire branch of the MND Association.

    Christian’s journey inspired a wave of fundraising efforts from friends, family, and supporters — each one a testament to his impact and the love surrounding him. Highlights include:

    🏃 Si Coopey’s 96-mile Highland Way run

    ✈️ Neil Cox’s first flight in 35 years, overcoming a lifelong fear to honour his best friend

    🎸 Charity gigs, cake sales, marathons, and raffles — featuring everything from Mandalorian helmets to motorcycles

    🎶 Support from local bands, musicians, venues, and a generous grant from Ride2Give

    These funds helped Christian access vital equipment, including a specialist wheelchair and Eyegaze technology, which allowed him to continue DJing and producing music without the use of his hands. These tools will now be donated to others living with MND, extending Christian’s legacy even further.

    A celebration of Christian’s life was held at Heroes Bar in Worcester, owned by his partner Siân Patterson, where the donation was formally handed over.

    “Christian’s creativity and strength touched so many lives. This fundraiser is a beautiful reflection of the community he built and the hope he continues to inspire.”

    Thank you to everyone who contributed — your generosity is helping change lives and honouring Christian’s memory in the most meaningful way.

Social Groups

Worcester Branch Monthly Meeting Social Group
Worcester Group Weekly Meeting Photo

The Social Groups meet up as follows: 

The Worcestershire Social Group meets at St Richard's Hospice in Worcester, on the first Tuesday of each month from 2.00pm - 4.00pm.

The Herefordshire Social Group meets at St Michael's Hospice in Hereford on the third Tuesday of each month from 2.00pm - 4.00pm. 

These are very informal events and open to all members and their families. We usually start at 2pm and free refreshments are provided. This is an opportunity to meet up with others on a similar journey to just chat, swap tips, have a giggle, ask questions or seek advice. Please see poster below for 2025 dates: 

Worcester Social Group

                  - Newsletter - 2025 Q1

Hereford Social Group 

Events - 

Dates for your diaries...

Christmas Meal - December 2nd at Bromsgrove Golf Club - we are also requesting raffle prizes for this event, so click here for details.

Grants

MND is a cash hungry disease which is why we have a range of grants available under different headings. Support (equipment etc), Quality of Life ( holiday, gardening, transport etc), Carers ( spa days, hobbies etc), Young Persons ( hobbies, driving lessons etc) and a Cost-of-Living grant of £500 available to everyone living with MND. 

Grant Support

Click the link to find out more.

Online support groups

As an Association we run a range of online support groups covering different topics including the following: 

  • A veterans support group for military veterans
  • A PMA-PLS support group for people living with Progressive Muscular Atrophy (PMA) or Primary Lateral Sclerosis (PLS)
  • A Tracheostomy support group for people living with MND who have had a tracheostomy
  • A Let's Talk Continuing Healthcare (CHC) peer support group open to people want to learn more about CHC funding processes or facing problems with an existing care package
  • A Recently Diagnosed MND support group for people affected by MND in the last 12 months

If you would like to join any of these online groups or find out more you can find contact details on our Online Support Groups page 

Volunteer with us

Could you give your time to make a difference to people affected by MND in Herefordshire and Worcestershire? 

We recognise that time is valuable and, whether you donate time as a one-off or become a regular volunteer, we're grateful for all support. Volunteering with your local group is a fantastic way to join our MND family and help your local community make a real difference to people affected by MND.

We currently have the following volunteering opportunities available: 

For further information contact Marianne Grant on marianne.grant@mndassociation.org or call her on 01604 800 622. You can also view more details about our volunteering roles and apply directly on our website volunteering opportunities page. 

Fundraise for us

Fundraising locally is a very important aspect for our group and helps us provide local support, contribute to research commissioned by the MND Association and promote awareness of the disease.

Our branch fundraising team can offer support with your event with T-Shirts, Advertising, Decorations and anything else you need to hold a great MND event!

Contact: john.burrows@mndassociation.org 

For fundraising enquiries please email emma.butler@mndassociation.org

Donations

 Just Giving

You can donate directly to the Hereford & Worcester group using our Just Giving. It is a safe and efficient way to pass on donations towards helping people in the Hereford & Worcester area.

If you'd like to donate to the Group you can donate online using the link below. Alternatively if you would like to donate using our bank details please email marianne.grant@mndassociation.org. For data protection reasons, we do not store bank details on our website.