Online support groups

Bereavement Support Group

A peer-to-peer support group offering understanding and shared experiences 

Takes place on the second Wednesday of the month at 7pm and the fourth Wednesday of the month at 11am (you may choose to attend one or both groups)

For more information contact Angela Richards or Sarah Lowther

Evening monthly carers group 

A virtual cuppa and friendly chat with other carers of people living with MND 

Takes place on the last Wednesday of the month from 6.30pm

For more information contact Angela Richards

PMA-PLS support group

For people living with Progressive Muscular Atrophy (PMA) and PLS (Primary Lateral Sclerosis) both of which are less common forms of MND

Takes place on the second Monday of the month from 5pm-6pm 

For more information contact Andrea Sedman-Hobson or Jo Campbell

Toferson treatment support group

For people living with MND who have the SOD1 gene and are on the Tofersen treatment. A peer-to-peer support group offering an opportunity to share ideas and experiences

We meet via zoom once a month, times vary so we can suit as many people as we can

For more information and upcoming dates contact Alli Anthony

Tracheostomy support group 

For carers of people living with MND who have had a tracheostomy. A peer-to-peer support group offering an opportunity to share ideas and experiences

Timing alternates between evening and day time

For more information and upcoming dates contact Lisa Burnard

Veterans support group

For military veterans who are living with MND. An opportunity to share your experiences and common interests. 

Takes place on the third Thursday of the month from 3-4pm

For more information contact Grace Kay

Working with MND peer support group

For people living with MND who continue to work. A peer-to-peer support group offering an opportunity to come together to share experiences in a safe and supportive way. 

For more information and upcoming dates contact Jo Cunnah

Let's Talk Continuing Healthcare (CHC)

A peer support group for people living with and affected by MND, Association volunteers and Health and Social Care Professionals wanting to understand more about CHC funding processes or are facing problems with an existing care package. 

Takes place every six weeks on Mondays from 11am

For upcoming dates and further information contact Anne Anderson

All Wales Virtual Support Group

For people living with and affected by MND in Wales

For upcoming dates and further information contact Jo Cunnah or Sarah Lowther 

All Wales Past Carers Group

For bereaved carers of loved ones with MND in Wales

For upcoming dates and further information contact Sarah Lowther or Jo Cunnah 

These groups are open to individuals living in the following geographical areas:

• Hampshire, Isle of Wight and Jersey
• East and West Sussex
• Kent
• South, East and North London
• Surrey and South West London
• Hertfordshire and Essex
• East Anglia

Online group for carers (am)

A virtual cuppa and friendly chat with other carers of people living with MND.

Takes place on the first Tuesday of the month from 11am-Noon

For more information contact Lisa Burnard or Kathryn Parkin

Online London Support Group

A support group to ensure that those affected by MND have a dedicated space to connect, share experiences, and support one another. Open to people living with MND and people affected by MND.

Takes place on the first Wednesday of the month from 11am-Noon

For more information contact Abigail Igbokwe

Tea, coffee & catch up peer to peer support group 

An informal peer-to-peer supoprt group offering an opportunity to share ideas and meet others living with and affected by MND.

Takes place on the third Tuesday of the month from 11am-12.30pm

For upcoming dates and more information contact Liz Cooper or Dawn Pond

Recently Diagnosed Group

Open discussion for people recently diagnosed with MND and their loved ones

Takes place on the third Friday of the month from 2-3pm 

For more information contact Lisa Burnard 

Introduction to the MND Association (East of England)

If you or a family member had recently been diagnosed in the East of England area this is an opportunity to join online for a chat and to hear about support available

Upcoming dates for the meetings, take place online from 2-3pm, are as follows: February 17th, April 21st and June 16th

For more information contact Liz Cooper or Chloe Rich

These groups are open to individuals living in the following geographical areas:

• Devon and Cornwall
• Somerset and Dorset
• Bristol and West (including Gloucestershire and Wiltshire)
• West Midlands South
• West Midlands North
• Thames Valley
• Central Midlands
• East Midlands

Recently Diagnosed Group 

An informal online peer-to-peer support group lead by staff members, this is open to anyone in the region diagnosed with MND within the last 12 months. It comprises three sessions, one per month over a three month period. Dates for the next group are as follows: 

Monday 12th January 2-3pm 2026

Monday 9th February 2-3pm 

Monday 9th March 2-3pm

To register your interest or for more details please contact Andy Graham or Marianne Grant. Cut off date for registering interest in the group starting in January is the end of the day on Monday 5th January 2026