Draft version of Unlock The Door: Fast-track accessible housing for people with MND

"I think having a safe and accessible home has taken away some of the stress or worry, not so much from me, but from my wife, Rachel, my children. I think they're happier that I'm in a safer place." - Martin 

Take action now

For people living with motor neurone disease (MND), home adaptations are essential. Ramps, wet rooms, stairlifts, wider doorways can help people stay safe, independent, and able to live with dignity. 

But the system is failing them. 

The Disabled Facilities Grant (DFG), which funds these adaptations, takes around a year on average to complete. With a third of people with MND dying within a year of diagnosis, this delay is simply unacceptable. 

We’re calling on every council to commit to completing all approved large adaptations within four and a half months because people with MND don’t have time to wait. 

Check your council’s commitment 

Use our postcode lookup tool to see whether your local council has pledged to fast-track home adaptations for people with MND. 

After checking your postcode, you’ll be able to: 

1. See whether your council has a good fast track process in place
2. Email your councillors directly if they haven’t
3. Join our Unlock the Door campaign to help ensure every council unlocks the door for people with MND. 

For people with MND, the system isn’t just slow, it’s failing. Too many stories are highlighting a system that is not designed for progressive conditions like MND. 

Ask your local councillors to fast-track accessible housing for people with MND.