Legacy Stories
Sarah
April 2026
In 2011, Sarah's dad was diagnosed with MND and lived with the disease for 20 months. Then, in a shocking twist of fate, Sarah's mum was diagnosed in 2024 but this time MND took hold, fast.
Support grants
Linda
April 2026
Despite her diagnosis, Linda continues to fundraise and engage in activities like pottery which she finds therapeutic. Linda emphasises the importance the Association’s support funds.
Legacy Stories
Jessica-Louise
April 2026
When Jessica-Louise's Nan returned from a holiday she was diagnosed with long Covid. The family challenged this diagnosis multiple times and eventually they were told it was MND.
Support grants
James
March 2026
James shares his experiences of MND and details the impact the disease has had on him, his home and his family whilst highlighting the difference Association support has made.
Caregiving
Rona
January 2026
Rona recounts her husband, Adrian's, journey with MND and Frontal Temporal Dementia (FTD). She discusses the emotional and practical challenges, emphasising the importance of making every day matter.
Fundraising
Martin
January 2026
Martin was diagnosed with MND in 2023 and emphasises the importance of support from family and friends. He completed an epic coast-to-coast cycling fundraiser to raise money and awareness for MND.
Fundraising
Liam
January 2026
Liam was diagnosed with MND in 2021 and has taken part in fundraising activities. He has had financial support grants from the Association to adapt his home and his MND progresses.
Living with MND
Jaki
January 2026
Jak was diagnosed with MND in 2022. Initially hesitant to accept help from strangers, she now has a great relationship with her carers. Jaki uses eye-tracking technology to write poetry.
Adaptations
Martyn
December 2025
Martyn wife Anna was received an MND diagnosis in 2023 aged 39. Despite the emotional and financial strain, the family work hard to stay positive, using laughter to bring light to the darkness.
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