A collection of personal stories and experiences from the MND community.
Working with MND
Lorraine
15 October 2025
Lorraine was diagnosed with MND in May 2024. She discusses the support she receives from her employer and family and emphasises the importance of living life fully, and planning for end-of-life care.
Tahira was diagnosed with MND in 2020 after having symptoms for 18 months. She emphasises the importance of focusing on the person rather than the illness and Amna reflects on her mother's strength.
Eugene lives in Chelmsford with his wife Nicola and their two children. Before his MND diagnosis, Eugene had a very active life, and the family spent five years living in Hong Kong for Eugene’s work.
Alex was diagnosed with MND in 2021 at the age of 30. Alex and his husband Craig made the decision to embrace life and make as many special memories as possible.
Tracy shares her journey from losing her husband, David, to MND in 2016 to becoming an Association Visitor, Branch Chair for the West Yorkshire Branch and clinic volunteer.
Debbie was diagnosed with MND in 2022 at just 55. Following her diagnosis, she was determined to share her story online and support other women with MND.
Zoe lives in London and was diagnosed with MND in 2022 after noticing early symptoms when recovering from a serious back operation. Zoe is passionate about raising awareness.
We interviewed Nickie at the stables - her happy place - to find out what life with MND is like and how she keeps positive during the daily challenges MND presents.
Patrick was diagnosed with PLS in December 2023 after experiencing symptoms in April 2022. Life with MND looks different now, but he still maintains his passion for music.
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