Legacy Stories
Jessica-Louise
April 2026
When Jessica-Louise's Nan returned from a holiday she was diagnosed with long Covid. The family challenged this diagnosis multiple times and eventually they were told it was MND.
Support grants
James' Story
March 2026
James shares his experiences of MND and details the impact the disease has had on him, his home and his family whilst highlighting the difference Association support has made.
Caregiving
Rona
January 2026
Rona recounts her husband, Adrian's, journey with MND and Frontal Temporal Dementia (FTD). She discusses the emotional and practical challenges, emphasising the importance of making every day matter.
Fundraising
Martin
January 2026
Martin was diagnosed with MND in 2023 and emphasises the importance of support from family and friends. He completed an epic coast-to-coast cycling fundraiser to raise money and awareness for MND.
Fundraising
Liam
January 2026
Liam was diagnosed with MND in 2021 and has taken part in fundraising activities. He has had financial support grants from the Association to adapt his home and his MND progresses.
Living with MND
Jaki
January 2026
Jak was diagnosed with MND in 2022. Initially hesitant to accept help from strangers, she now has a great relationship with her carers. Jaki uses eye-tracking technology to write poetry.
Adaptations
Martyn
December 2025
Martyn wife Anna was received an MND diagnosis in 2023 aged 39. Despite the emotional and financial strain, the family work hard to stay positive, using laughter to bring light to the darkness.
Support grants
Kamila
November 2025
Kamila shares her journey with fast-progressing MND and reflects on the rapid changes to her life, from an active lifestyle and a dream wedding in Poland to adapting her home and relying on carers.
Legacy Stories
Tom
November 2025
Tom's brother, Rob, was diagnosed with MND at the age of 24. As his older brother, Tom was determined to make every day count and help his brother achieve his dreams.
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