A collection of personal stories and experiences from the MND community. 

L - R, Courtney, Hayley and Frankie - at home
Caregiving

Courtney and Frankie

June 2026
Courtney and Frankie share their experiences caring for their mum with MND and FTD. They highlight the support from the MND Association and emphasise the importance of making memories.
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Matt and Gill at the carers personal grooming workshop, smiling
Caregiving

Matt

June 2026
Matt discusses the challenges of being a full-time carer for his partner Gill who has MND. He highlights the emotional toll and the lack of understanding from others.
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Cropped picture of Chris receiving his award
Volunteering

Chris

June 2026
Chris, a retired electrical engineer, shares his experiences with MND and volunteering. His wife, Brenda, was diagnosed with MND in 2005 at age 44.
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Amelia with her dad when she was young. They lay on a hammock smiling to camera.
Volunteering

Amelia

May 2026
After losing her father to MND, Amelia began volunteering for the Association, raising awareness through social media.
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Andrew and team Clan Gough at the Rob Burrow Leeds Marathon 2026
Fundraising

Andrew

May 2026
Andrew was diagnosed with PLS in 2024. He champions the importance of a positive mental attitude and adaptability as the disease progresses.
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Sarah her sister Emma and their parents at a summer garden party. Sarah's dad is in an electric wheelchair.
Legacy Stories

Sarah

April 2026
In 2011, Sarah's dad was diagnosed with MND and lived with the disease for 20 months. Then, in a shocking twist of fate, Sarah's mum was diagnosed in 2024 but this time MND took hold, fast.
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Jessica-Louise with family, her nan and grandad stand in the middle
Legacy Stories

Jessica-Louise

April 2026
When Jessica-Louise's Nan returned from a holiday she was diagnosed with long Covid. The family challenged this diagnosis multiple times and eventually they were told it was MND.
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James looking directly at camera wearing a dry robe. He sits outside in nature.
Support grants

James

March 2026
James shares his experiences of MND and details the impact the disease has had on him, his home and his family whilst highlighting the difference Association support has made.
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Rona and Adrian smiling at the camera
Caregiving

Rona

January 2026
Rona recounts her husband, Adrian's, journey with MND and Frontal Temporal Dementia (FTD). She discusses the emotional and practical challenges, emphasising the importance of making every day matter.
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