A collection of personal stories and experiences from the MND community.
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Kamila
November 2025
Kamila shares her journey with fast-progressing MND and reflects on the rapid changes to her life, from an active lifestyle and a dream wedding in Poland to adapting her home and relying on carers.
Tom's brother, Rob, was diagnosed with MND at the age of 24. As his older brother, Tom was determined to make every day count and help his brother achieve his dreams.
Diana, a former education administrator, shares her journey with MND. Initially, Diana was told her symptoms were down to stress. She later received a formal diagnosis of MND.
Lorraine was diagnosed with MND in May 2024. She discusses the support she receives from her employer and family and emphasises the importance of living life fully, and planning for end-of-life care.
Tahira was diagnosed with MND in 2020 after having symptoms for 18 months. She emphasises the importance of focusing on the person rather than the illness and Amna reflects on her mother's strength.
Eugene lives in Chelmsford with his wife Nicola and their two children. Before his MND diagnosis, Eugene had a very active life, and the family spent five years living in Hong Kong for Eugene’s work.
Alex was diagnosed with MND in 2021 at the age of 30. Alex and his husband Craig made the decision to embrace life and make as many special memories as possible.
Tracy shares her journey from losing her husband, David, to MND in 2016 to becoming an Association Visitor, Branch Chair for the West Yorkshire Branch and clinic volunteer.
Debbie was diagnosed with MND in 2022 at just 55. Following her diagnosis, she was determined to share her story online and support other women with MND.
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