A collection of personal stories and experiences from the MND community. 

Keith with his wife Lisa and their son Charlie
Special Days

Keith's special day

June 2026
Keith, from Wrexham, is living with MND but is determined not to let it stop him working or celebrating his son following in his footsteps.
Louise with her friends at her FUN-eral
Special Days

Louise's special day

June 2026
Louise from Bedford has made the courageous decision to attend her own funeral to celebrate her life with family and friends, all whilst raising money for the MND Association.
Jim sits in his wheelchair on the front green outside his house. His adapted telescope is next to him. He smiles brightly.
Special Days

Jim's special day

June 2026
When MND took away the use of Jim’s arms and legs hobbies he once loved, Jim became fascinated with the night sky.
John watches the video Julie left. He sits on a chair in their living room, watching on a tablet.
Special Days

John's special day

June 2026
John married Julie in 2015, but after Julie was diagnosed with MND in 2023 and died just 212 days later, John discovered a special message from beyond the grave which continues to comfort him today.
Anna and Martyn attending EnCouRage - Anna looks at Martyn during a table discussion, she smiles his way as he is in conversation with others
Special Days

Anna's special day

June 2026
Anna was just 39 when she started experiencing early symptoms of MND. After her devastating diagnosis, Anna, was invited to the MND Association’s EnCouRage event.
Mike listens to his cloned voice for the first time - he sits in front of a laptop with headphones
Special Days

Mike's special day

June 2026
When Mike was recording a video message during the pandemic and noticed a change in his voice, he was immediately filled with horror and concern. Mike’s voice was changing because he had MND.
Andrew delivering his best man speech at his brothers wedding. He holds a microphone in one hand and his written speech in another. He stands in front of an exposed brick wall.
Special Days

Andrew's special day

June 2026
Andrew Hartley gave the speech of his life at his brother’s wedding in April – four months after being diagnosed with MND.
Close up of Sylvia and Jay in front of mountains
Special Days

Jay's special day

June 2026
Jay, who is living with MND, is determined not to let the disease take away his sense of community or adventure.
Linda sitting at the pottery wheel, smiling
Special Days

Linda's special day

June 2026
Despite her diagnosis, Linda continues to fundraise and engage in activities like pottery which she finds therapeutic. Linda emphasises the importance the Association’s support funds.