Meena, aged 47, is the main carer for her father who is living with MND. He was diagnosed in 2018. Meena talks about her care experience from a cultural point of view. She says, “I want to reassure the Asian community that MND is a condition worth learning about. If you’re affected by a diagnosis, reach out for information and support as soon as possible.”
See Meena's interviews below...
1. Early signs and diagnosis
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2. Access to healthcare
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3. Breathing and ventilation
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4. Communicating
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5. Managing symptoms
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6. Eating and drinking
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7. Emotional and psychological support
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8. Social care
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9. Equipment and adaptations
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10. Carer and family support
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11. End of life decisions and planning ahead
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12. Genetic testing
Page last updated: March 2026
Next full review: March 2027