Are you interested in taking part in research studies? There are plenty of opportunities to get involved in a wide range of different studies. This page highlights research projects which are currently looking for people to take part. These studies include those which are testing a treatment (in clinical trials), as well as studies which are focused on better understanding the biology of MND and improving care and quality of life for people with and affected by MND.
If you would like to receive research participation opportunities straight to your email inbox, sign up to our MND Research List and Research Monthly newsletter. You can also find out about research projects taking place in the UK on the UK MND Clinical Studies Group website.
Treatment Trials
These are clinical trials which are testing potential treatments for MND, currently recruiting in the UK.
Symptom Management
These studies are investigating better ways to manage symptoms associated with MND, with the aim of improving quality of life for people living with MND.
SETTLE: Investigating how to increase cough strength by improving "cough assist" devices
Recruiting people with MND around London
OptiCALS: A Randomised Controlled Trial to evaluate a nutritional management intervention
Recruiting people with MND and their carers UK-wide
DENIM trial: Delivering Effective Non-Invasive Ventilation in Motor Neuron Disease
A trial to improve delivery of non-invasive ventilation
Biomarker Studies
These studies may ask you to donate biological samples, such as blood or urine, or take part in clinical tests, such as brain scans, to help find new biomarkers for MND. Biomarkers are markers in the body which can measure changes that are happening in the body. Biomarkers could be helpful for earlier diagnosis of MND, tracking changes in disease over time, or monitoring treatment response.
ALS Biomarker Study: Collecting biological samples to search for biomarkers
Recruiting people with MND, healthy controls and neurological controls in London
ACORN: A C9orf72 National Study
Recruiting people with MND, family members and healthy controls UK wide
Improving Wellbeing
These studies are investigating better and more effective ways to support people living with and affected by MND, to improve quality of life.
TONiC: Examining the factors influencing qualify of life in neurological conditions
Recruiting people with MND UK-wide
Understanding the impact of a virtual peer support programme on wellbeing and caregiver burden
Recruiting peer supporters and carers UK-wide
iDeliver MND: Improving psychological support in MND
Recruiting people with MND and informal carers
Exploring how changes in behaviour affect quality of life for people living with MND
Recruiting people with MND in the UK
ChiMND: Complex Homecare in MND
Recruiting homecare workers with experience of providing complex homecare to people with MND
Navigating the Unknown: Post-Diagnostic Support Needs of Informal Carers in MND
Recruiting informal (unpaid) carers in the UK
Technology and Tools
These studies are using new technology and tools to improve diagnosis, care, and quality of life for people living with and affected by MND.
MND Register: Collecting information about every person living with MND in England, Wales and Northern Ireland
Recruiting people with MND in England, Wales and Northern Ireland
TiM-R: A remote platform for MND research
Open to people with MND
Measuring caregiver stress using smartphone surveys
Recruiting family caregivers UK-wide
CognoMND™: A digital tool to identify changes in thinking and behaviour
Recruiting people living with MND and carers
Developing a decision aid for genetic testing in MND
Recruiting people with MND and their close relatives
Understanding user experience and satisfaction of cervical neck collars
Recruiting people who use cervical neck collars
Patient and Public Involvement (PPI)
PPI studies are an opportunity to get involved in the design of a project, activity or service. In PPI studies, researchers work with people living with and affected by MND to make sure their research is relevant, beneficial, and important to the MND community.
Sheffield MND Research Advisory Group
Recruiting people with MND, their carers and family members
Improving the data collected by MND registries
Recruiting people with MND and their carers in Lancaster
Involving people with MND in making decisions about their care
Recruiting people living with and affected by MND
Motor Neurone Disease Research Data Catalyst
Recruiting people with MND, carers and family members
Other Studies
These studies do not fit into any of the other categories on this page, and may include studies for healthcare professionals, improving clinical practice etc.
Exploring the experiences of healthcare professionals who work with people with MND
Recruiting healthcare professionals in the UK
The use of reproductive medicine options in families with inherited MND
Recruiting people with or affected by inherited MND in the UK
Exploring Variation in Social Care Needs Assessments
Recruiting people living with MND and unpaid carers