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About MND
Support and information

Colin and Georgina's views

Colin is living with Kennedy’s disease and aged 72. His wife Georgina is his main carer. Colin self-diagnosed in 1998 as he was already aware of Kennedy’s…

About MND
Support and information

Sue's views

Sue is living with MND and aged 69. She was diagnosed in 2022 and talks about her experience living alone and the impact this has on managing her care.

About MND
Support and information

Ian and Deanne's views

Ian is living with MND and aged 70. He was diagnosed in 2024 and his wife Deanne is his main carer. They talk openly about the impact of MND as individuals and…

About MND
Support and information

David's views

Watch David share his experiences of living with motor neurone disease (MND), including diagnosis, healthcare, and daily life. Includes video clips and…

About MND

What is Kennedy's disease?

Kennedy’s disease is also known as spinal bulbar muscular atrophy (SBMA) and is a rare disorder of the motor neurones, caused by a genetic mutation. If you are…

Birmingham and Solihull Group

Find out more about the Birmingham and Solihull Group of the Motor Neurone Disease Association.

James's Appeal

Alex lost his life to motor neurone disease in March 2022. He wrote this message to you just before he died.

News

Cost of Living Support Fund rises to support with household bills

The uplift marks a £150 increase, from £350, and those who have already received the previous amount can still apply for the difference should they need to

Children and young people

Do you know someone with motor neurone disease (MND)? If you are aged up to 18, find out more here. There is also information for parents and guardians,…