Latest News
News
Kevin Sinfield CBE announces sixth challenge supporting MND charities
28 May 2025
Challenges have raised more than £10million
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MND Register fulfils promise in supporting research progress
27 May 2025
Information shared by people with motor neurone disease (MND) through the MND Register is supporting the global effort to accelerate MND research and find causes, treatments and a cure for the disease
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MIROCALS: what’s next?
15 May 2025
Our response to the Clinical Studies Group statement on the MIROCALS trial results
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New support around accessing continuing healthcare (CHC) funding
14 May 2025
The pilot project aims to help individuals navigate the process of applying for continuing health care (CHC) funding
Association News
Rob Burrow Leeds Marathon runners brave the heat to raise more than £500,000
12 May 2025
Thousands turned out to cheer the runners around the 26 mile course
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MIROCALS trial results published
9 May 2025
The results of the MIROCALS trial, investigating the impact of low dose interleukin 2 (IL-2) in people with MND, have been published in The Lancet
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MND community comes together to Run for Rob
9 May 2025
The city of Leeds will come to a standstill this weekend
News
Join us today
6 May 2025
People are unfairly missing out on tofersen, the first effective new motor neurone disease (MND) treatment to be identified for decades.
News
Marathon runners unite to raise £500,000 to support people living with MND
2 May 2025
A total of 330 incredible #TeamMND runners took to the streets of London and Manchester in sweltering conditions on Sunday to help raise funds and awareness of motor neurone disease (MND).