This page includes useful information, links and general resources about each of our volunteering roles.

We are always working on improving our resources, so if there is anything that you need and cannot find here, please get in touch to let us know.

To contact the Volunteering Team, reach us on volunteering@mndassociation.org or 01604 611681.

Helpful Information

All Volunteering Roles

Below our Volunteer Roles are listed, broken down by Local Branch/Group Roles (eg. Branch Chair, Group Leader, Social Media Co-ordinator, etc.) and Support Volunteering Roles (eg. Association Visitors, Support Group Helpers, etc.).

Please note that our teams made up of Community Support Co-ordinators ('CSCs'), Relationship Fundraisers ('RFs') and, where applicable, Campaigns teams, hold the overall responsibility for local volunteering management. As such, all of our local volunteer recruitment, through to volunteering management, is carried out and connected locally via their ongoing leadership and support.

If you are a volunteer and you want to get involved with growing your volunteering community, get in touch with your local teams to discuss.

Local Branch or Group Volunteer

Branch Vice Chair

Branch or Group Campaigns Volunteer

Support Volunteer

Association Visitor

Association Visitors provide emotional and some practical support to people with MND and their families.

Association Visitor role profile

Association Visitor role profile (Welsh)

Helpful Resources

Data collection and recording

Association Visitor Co-ordinator

Association Visitor Co-ordinators link with local staff to help build and support a team of Association Visitors ('AVs') in their local area.

Association Visitor Co-ordinator role profile

Association Visitor Co-ordinator role profile - Welsh version 

 

Support Meeting Co-ordinator / Facilitator

Support Meeting Coordinators (sometimes called Facilitators) organise regular coffee mornings, afternoon teas, support meetings or drop-ins for people living with MND, their families and carers.

Guidance on branch and group meetings (including support meetings)

Support Meeting Coordinator role profile 

Support Meeting Coordinator role profile (Welsh)

Support Event Helper

Support Event Helpers help at coffee mornings, afternoon teas, support meetings or drop-ins for people living with MND.

Guidance on branch and group meetings (including support meetings)

Support Event Helper role profile

Care Services Navigator

Care Services Navigators support people affected by MND, their families and carers to navigate health and social care services.

Care Service Navigator Role Profile

 

Carers' Champion

Carer’s Champions provide information to carers about support available to them and help bring new, existing and past carers together.

See more details on the Carer's Champions webpage

Carers Champion Role Profile

 

Regional / National Volunteer

Trustees

Trustees are responsible for directing the affairs of the Association, ensuring that it is solvent, well run, that it complies with current legislation, and that it delivers its charitable outcomes for the benefit of those people for whom it exists.