Every single person with motor neurone disease (MND) can help the global effort to find causes, treatments and ultimately a cure for MND. By allowing us to collect your data your details will become part of the big picture, helping researchers focus their knowledge and expertise in the right areas.
Thank you to everyone who has joined the register and to everyone who will join in the future. Together, we will use the MND register to learn more about MND.Professor Kevin Talbot
University of Oxford
Why is the MND Register so important?
We have gathered data from over 4,000 people with MND across England, Wales and Northern Ireland. With your support we can make it the key single source of information about MND in the country.
And together that means we will improve the lives of people living with MND by helping to plan care, research causes and potential treatments.
If you would like more information about the MND Register or, if you’re living with MND and you would like more information please contact the MND Register team firstname.lastname@example.org.
There are a number of clinics and care centres collecting data about people with MND for the MND Register. The data are collected as part of routine clinic visits, so you can also talk to the team at your MND clinic.
The MND Register is funded by the MND Association and led by Professor Ammar Al-Chalabi at King’s College London and Professor Kevin Talbot at Oxford University.
We are grateful for the support of the Betty Messenger Charitable Foundation and a family trust that wishes to remain anonymous, in enabling us to fund this project.