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There are a number of ways in which you can get involved in the MND Register. This can be through your clinical team or via the self-registration website. Professor Kevin Talbot
University of Oxford

Have you #MNDRegisteredYet?

Every single person with motor neurone disease (MND) can help the global effort to find causes, treatments and ultimately a cure for MND. By joining the MND Register your details will become part of the big picture, helping researchers focus their knowledge and expertise in the right areas.

Why is the MND Register so important?

More than 2,000 people with MND have already joined the MND Register of England, Wales and Northern Ireland. With your support we can make it the key single source of information about MND in the country.

And together that means we will improve the lives of people living with MND by helping to plan care, research causes and potential treatments. Join the register today

If you would like more information about the MND Register or, if you’re living with MND and you would like to join the MND Register please click on the link below.

There are also a number of clinics and care centres recruiting people living with MND as part of clinic visits, so you can also talk to the team at your MND clinic about signing up for the MND Register.

The best way to contact the MND Register team directly is via email at:

Thank you to everyone who has joined the register and to everyone who will join in the future. Together, we will use the MND register to learn more about MND. Professor Kevin Talbot, University of Oxford

The MND Register is funded by the MND Association and led by Professor Ammar Al-Chalabi at King’s College London and Professor Kevin Talbot at Oxford University.

We are grateful for the support of the Betty Messenger Charitable Foundation and a family trust that wishes to remain anonymous, in enabling us to fund this project.

Read about the MND Register

You can read more about the MND Register of England, Wales and Northern Ireland on our research blog or in our Spring 2019 edition of Thumb Print magazine.

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262