Parliament was prorogued on Friday 24 May and will be dissolved on Thursday 30 May.

All APPGs including the APPG on MND will also be dissolved and will cease to exist.

The new Parliament will first meet on Tuesday 9 July. We hope to see the APPG on MND re-formed soon after.

The following information on this page is present for archival purposes only and remains accurate until the dissolution of Parliament on 30 May 2024. 

Andrew Lewer - APPG dinner

The All-Party Parliamentary Group (APPG) on MND is a cross-party group of MPs and Peers with an interest in MND. The purpose of the group is to increase awareness and understanding of MND amongst parliamentarians and to campaign for better access to high quality services for people affected by MND.

The group was established in 2002 and meets regularly in Parliament. Usually someone living with MND will speak at each meeting.

The MND Association provides the secretariat to the Group.  For further information please contact Sian Guest on [email protected] or call 029 2240 4709.

The Chair is Andrew Lewer MBE MP, contactable at [email protected].

This is not an official website of Parliament. It has not been approved by either House. APPGs are informal groups of Parliamentarians with a common interest in particular issues. The views expressed are those of the group.

Sign up for the APPG newsletter

Read the Privacy Policy 

Keep up to date with the All-Party Parliamentary Group on Twitter

APPG reports

Inquiry into Personal Independence Payment

The APPG on MND launched an inquiry into access to Personal Independence Payment (PIP)* for people with MND in 2017.

The APPG released their report 'PIP and MND: Is the benefits system failing people with motor neurone disease?'

Read the report

Read the executive summary

*Personal Independence Payment (PIP) is a benefit for people aged under 65 to help pay for the extra costs of living with a disability or health condition.

Inquiry into access to communications equipment

The APPG on MND's report, Condemned to Silence, showed the findings of their inquiry into access to communication equipment for people living with MND. The inquiry attracted over 1,700 submissions of evidence from across England, Scotland, Wales and Northern Ireland.

Read the report

Read the executive summary

The report showed that the NHS has failed in its commitment to provide communication equipment for people living with MND.

Inquiry on specialist palliative care for people

The APPG held a public inquiry into access to specialist palliative care services for people with MND living in England. This was the first inquiry to be held by the Group.

Evidence was collected from a wide range of individuals and professionals including people with MND, past carers, neurologists, palliative care consultants, hospices and charities. Members from the APPG on MND also heard people’s own experiences and accounts of the services during four evidence sessions held at Westminster.

The report, published in June 2011, found that access to services is patchy, services are fragmented and funding is under pressure. Access to palliative care remains a postcode lottery for many people with MND, with some people living with MND receiving excellent palliative care, whilst many others do not.

Read the report

It is hoped that the recommendations outlined in the report will help to reduce the amount of suffering endured by people with MND and, in the face of a significant squeeze on NHS budgets, deliver value for the public purse.