To better understand whether emotional support delivered via video call is successful in helping people in palliative care. 

Video calls between people with diseases and professionals located in different places is now an established part of healthcare practice. For people with life-shortening illnesses that affect mobility, such as MND, video calls may be a suitable way to receive emotional support to limit travel. This support could be anything from counselling to art therapies, chaplaincy, or social work. 

This study aims to understand more about the advantages and challenges of delivering this support by video calls in order to help improve current palliative care services. People with life-shortening illnesses and professionals have differing opinions about the value of video calls. Some welcome spending less time and money travelling to appointments when these can happen in their own homes. Others worry that video calls may reach more people but reduce the quality of care provided. 

This research uses observations, interviews, and collage-making to learn from the experiences of a range of people with diseases and staff who use or have used video calls in palliative care. Findings from this study will be compared to existing research to better understand what works well so that palliative care organisations can use technology appropriately to meet the needs of everyone who may access these forms of emotional support.

Taking Part

What does taking part involve?

There are three ways to participate, and participants can choose one or more:

1.    Being interviewed in-person or online. This will be a structured conversation of about 30 minutes.
2.    Making a collage using pre-cut images (a kit is provided; participants can use their own materials too) 
3.    Demonstrating to the researcher the practicalities involved in video calls
 

Who can take part?

  • People with MND who have experience of using video calls for emotional support services.
  • Family members and carers of people with MND who have experience of using video calls for emotional support services.
  • Healthcare professionals/volunteers who work in adult palliative care organisations.
  • Aged 18+

Participants must have links to an adult palliative care organisation in England.

How can I take part?

To register interest in taking part in the study or find out more information, please contact Michèle Wood on [email protected].

 

Study location

England-wide

Funding

This project is funded by Marie Curie.