Riluzole supply issue

We are aware of a reduced supply of the drug riluzole, this is due to some manufacturers ceasing production.

We are currently liaising with the Department of Health and Social Care and manufacturers who are working to speed up and increase production.

It is important to know that riluzole is a NICE approved drug and people with MND are legally entitled to this. If you are turned away at the pharmacy as the ‘generic’ riluzole product is out of stock, your prescriber can make a prescription for a branded product e.g. Rilutek or Teglutik. Riluzole is the same whatever the brand prescribed though Teglutik is a liquid form which could be a change for some people.

Whilst our MND Connect team are unable to offer any further information on where to source riluzole, they are available should you have any additional queries or concerns. The team can be contacted on 0808 802 6262 or via mndconnect@mndassociation.org

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262