33 results found

  • June 13, 2017

Clinical trials

There is a worldwide research effort underway to develop new and effective treatments for MND. The only drug licenced in the UK is riluzole, which slows down the progression of MND. A great deal has

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  • May 21, 2018

Take part in research

Our aim is to provide people with MND the opportunity to take part in research studies. Below we list research projects that currently recruit participants for their study. These do not always involve

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  • September 22, 2017

Research updates

SYT13: A protective gene against motor neuron degeneration? The protein synaptogamin (SYT13), which was found to be strongly activated in neurons that control eye movement (which are largely

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  • June 29, 2017

Stem cell therapy

Although the use of stem cells as a treatment for MND may eventually be possible, the general perception among scientists and clinicians is that research in this area is not yet sufficiently well

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  • June 22, 2017

Treatment trials

There are many clinical trials investigating various treatments for MND across the world. Here we focus on trials that are in the spotlight and provide you with updates on the latest results and

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  • June 21, 2017

Genervon (GM604)

Genervon is an American pharmaceutical company that is behind a treatment called GM604. This drug is currently under investigation as a treatment for MND/ALS. According to Genervon's press releases,

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  • June 20, 2017

Unproven treatments

Unproven treatments have not undergone rigorous testing for their safety and effectiveness. They are also often not supported by any reliable evidence. The only drug licenced in the UK is riluzole,

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  • January 16, 2020


Evaluating multiple drugs simultaneously in an innovative clinical drugs trial Motor Neurone Disease – Systematic Multi-arm Adaptive Randomisation Trial (MND-SMART) is a innovative clinical drugs

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  • May 25, 2017

What do I do now?

A diagnosis of motor neurone disease (MND) or Kennedy's disease can feel overwhelming and it may take time to adjust. Select from the following for what to think about next. “The MND Association

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For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262