Debbie Martin

I am mum to three boys and nanny to seven grandchildren. I have worked in the NHS for 40 years and am a qualified nurse.

My partner of 18 years, Rich, was diagnosed with MND in February 2020. Rich was a fit, active, healthy man, still working part-time at the time of diagnosis. Sadly, Rich passed away 225 days after diagnosis in September 2020. Rich and I had discussed what his care looked like and where he wanted to be looked after, which was at home by me and our children. I am really proud that we achieved everything Rich wanted - his wishes fulfilled.

Three days after Rich passed away, I made a video detailing our seven-month journey documenting the highs and the lows. I shared my video with the MND Association with a view to helping others. I joined our local MND group and became a volunteer.

I decided to apply to become a trustee and was overwhelmed to have been elected. I see this as a real privilege.

My passion is helping carers support their loved ones with MND as well as campaigning, raising awareness and sharing my story.