I have had PLS, a rare form of MND, for just over six years and thus I know what it is like to have MND and live with it. I am passionate about improving the lives of people living with MND and their families, and promoting awareness of MND. My wife is my full-time carer so I understand how difficult this role can be.
I have been a campaigns volunteer for the charity, getting involved in campaigns such as Act to Adapt and been a member of the Policy and Campaigns Advisory Group. I have also carried out ad-hoc fundraising. Prior to becoming a campaigns volunteers, I was already posting about raising awareness of MND every Friday on Facebook!
In my working life I was a National Sales Manager, so I have good people and decision-making skills. I also sat on the Executive Board that oversaw the strategy and monitoring of various key performance indicators. I have been responsible for multi-million turnover, I have experience of financial responsibility.
I am a good listener and am used to being involved in making group decisions. I have many colleagues and families with MND and thus I am able to listen to their views on living with MND.