Raising awareness is a vital part of the Association. See below for details of our previous awareness campaigns over the last few years.
MND over Matter (2023)
Last year, we asked the MND community to share their first-hand experiences of living with MND or caring for someone with the disease to show how they put MND over Matter.
In these posts, shared on social media using the hashtag #MNDOverMatter, many highlighted the boundaries they push every single day, showcasing their stories of strength and resilience in the face of MND and inspired others to do the same by sharing or daring.
MND Collaborative Partnership / Richard Cannon photography (2022)
Collaboration and highlighting that MND does not discriminate were two strong themes for our 2022 campaign.
We were delighted to announce the MND Collaborative Partnership – a £4.25million grant to kick-start a UK-wide collaborative research effort into MND. It was awarded to six universities in the UK. The partnership will work together to address problems hindering MND research and aims to find treatments for MND within years, not decades.
A special photography exhibition took centre stage on the evening of Global MND Awareness Day. It was the brainchild of award-winning photographer Richard Cannon who, over a two-year period, captured an array of beautiful and poignant images of 16 people living with MND. His exhibition highlights that MND can affect anyone from any background and that the disease progresses differently for each person.
You can view these images in the Artsteps gallery below.
Our focus in 2020 highlighted the support we provide to people affected by MND, thanking those who help us to do that and encouraging the MND community to reach out to each other.
Our message was that in these difficult times we can't hold each other's hands, but we could be there for each other, offering a hand of friendship, kindness, support, knowledge, love – and of course thanks.
We asked the question - on Global MND Awareness Day who would you extend a hand to?
The Dance is a short film created to by Jess Journo to raise awareness of motor neurone disease (MND) in honour of Wendy Gladwyn, who dedicated her life to the arts, but sadly died of MND. Dance performed by Dana Fouras. Music composed by Brendan Void.
#MyEyesSay (2017)
If your eyes were all you could move, what would you say with them? That's the question we asked in our 2017 campaign - #MyEyesSay. Throughout June we shared the experiences of people living with and affected by MND.
We encouraged supporters to get involved by taking a ‘selfie’ and sharing their message through social media using the #MyEyesSay tag. These became part of a collage on the #MyEyesSay campaign website.
Shortened Stories (2016)
For our 2016 campaign 'Shortened Stories' we worked with those affected by the disease, artists and filmmakers to bring to life three stories that have been or will be cut short by MND.
