Alex lost his life to motor neurone disease in March 2022. He wrote this message just before he died.
In late 2018, my wife Laura and I stood at the start line of the 255km Transalpine Run. It felt like the biggest challenge we’d ever face together.
We had no idea that soon after, we’d be told I was dying from motor neurone disease (MND).
Now, I can’t walk. My arms have become so weak that I need help to eat. I can’t get out of bed, wash or dress myself. MND has taken almost everything from me.
By the time you read this, MND will have taken my life.
An MND diagnosis is a death sentence. There is no cure. But the MND Association is funding research that could find one. Will you give right now to help?
MND can strike anyone without warning. 1 in 300 of us will be diagnosed with it. I’d always been fit and healthy. But that doesn’t matter with MND. It wastes away your muscles and stops you moving your own body.
It’s impossible to predict how long it will take to kill you – and there’s very little you can do to slow it down. I wanted to be there for my young son and daughter as they grew up. I wanted to travel the world with my wife. I’d stored up hundreds of thoughts, big and small, about my future. Now, MND has forced our family to give up everything we’d ever hoped, dreamed and strived for.
It’s too late to save my life. But in these final months I can still ask for your help to spare other families from being torn apart by MND.
This nightmarish disease need not remain untreatable. Knowledge is advancing with each new research project. But more funding is needed to accelerate research towards a cure.
Will you be one of the people who makes that cure possible?
Please. Donate today. Let’s find a way to beat MND.
Thank you,
Alex
We have to find a way to beat MND. Will you help?
We’re searching for a cure at the new MND Research Institute
Donate today and you could help make sure that when promising new findings are made, we have the funding to explore them.
The MND Research Institute is a collaboration of MND researchers from around the UK that aims to make MND research as effective as possible.
As you read this, the best research minds from places like King’s College London, University College London, and the universities of Sheffield, Liverpool, Edinburgh and Oxford are working hard to beat MND.
With your help, their work could one day find the cure that Alex and his family would have loved to have had. Let’s beat MND together.
