Call for Nominations: PALS and CALS Advisory Council

The International Alliance of ALS/MND Associations, of which the MND Association is a member, is currently accepting nominations for the PALS and CALS Advisory Council (PCAC).

What is the PALS and CALS Advisory Council (PCAC)?

The PCAC is an Advisory Council and is charged with helping the Board of Directors (BOD) of the International Alliance of ALS/MND Associations consider many relevant topics. Including listening to the wide-ranging opinions and ideas of people with ALS/MND (PALS) and caregivers to people with ALS/MND (CALS) from across the globe.

The council will be tasked with specific goals by the Alliance Board, including:

  • Reviewing Alliance position statements to provide a PALS/CALS perspective
  • Developing global advocacy background for the Alliance Board of Directors that has a PALS/ CALS perspective
  • Curating, coordinating or creating PALS/CALS information, and social research
  • Providing an update at the Alliance Meeting annually on the outcomes from this Council

The PCAC meets once per month for one hour by ZOOM (video conference) to carry out their work. In preparation for each meeting there is approximately 1 – 3 hours of reading.

Those who are nominated for the council will need to have an understanding of the Alliance’s mission, vision, objectives, strategy and operations. They also cannot be a paid member of staff of an Alliance member association (such as the MND Association), another ALS/MND-centric organisation, or a profit making organisation that provides products or services to those affected by MND and not a member of the Alliance’s Board of Directors.

We would like to give those living with MND and those who are caring for someone the opportunity to put themselves or others forward for nomination (if you are nominating someone else please ensure they agree to this and provide us with their details). Those who have been nominated will then be looked at by a panel of staff from the MND Association and a limited number will be put forward for consideration by the Alliance. The Board of Directors of the Alliance will notify nominees directly if they have been successful. We will let all those who send nominations to us know if they have been put forward to the Alliance or not.

To be nominated by the MND Association, you must be living in England, Wales or Northern Ireland. Please make sure your nominations are sent by the closing date at Midnight on 27th February, any nominations received after this date will not be considered.

Nominations are now closed.

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262