Carers Week 2020 – Letter to the Minister

Support MND Carers

More than 3081 supporters have signed an open letter calling on the Government to provide better support to unpaid MND carers during the COVID-19 pandemic.

The letter will be sent to the Minister of State for Care Helen Whately MP, Deputy Minister for Health and Social Services in Wales Julie Morgan MS, and Northern Ireland’s Minister of Health Robin Swann MLA.

Unpaid carers provide a vital but often invisible frontline role to ensure those they care for continue to remain safe while wider society slowly begins to enjoy increased freedoms again as lockdown eases. However, many unpaid MND carers are under immense pressure to provide more care with no breaks and very little support.

It is vital that the Government takes urgent action to relieve the pressures unpaid carers face now, and in the future. The open letter sets out our calls for better support, including:

  • increase in Carers Allowance
  • improved access to testing and PPE
  • clear guidance that helps protect unpaid carers and those they care for as lockdown restrictions begin to be lifted.

The letter, on behalf of thousands of our supporters, says:

“We hope the Government agrees that unpaid carers deserve to be properly recognised and supported for their selfless commitment in caring for their loved ones with MND, with the toll of doing so having been significantly increased during this pandemic. Whilst as a nation we have been giving much-deserved attention to the efforts of the health and care workforce, unpaid carers should not be forgotten. They deserve to be invested in just as much as the NHS and Social Care as without their dedication, both systems would suffer directly as a result”

Read the full letter

Alongside the letter, we will share over 700 personal experiences of caring for people with MND. These experiences have been collected from current carers and former carers, and bring to life the physical, emotional, and financial challenges many MND carers are struggling to cope with.

Take action

Please watch the #supportMNDcarers video below. Then, tweet it to the Care Minister @Helen_Whately and share with your followers on Facebook to help increase awareness.

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262