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Carers financial guidance and benefits

You may need to consider your own finances when supporting a person with MND. For example, you may be entitled to claim some form of government benefit. If you are eligible, the amount and type of benefit will depend upon individual circumstances.

The MND Association information sheet 10A – Benefits and entitlements will give you further details (also see Further information below).

There are different benefits which you may be entitled to:

  • Carers Allowance
  • Carers Credit
  • Carers Premium

Information about Carers Allowance and Carers Credit, and how to apply, can be found at the GOV.uk website.

To claim Carers Premium visit the NHS website.

Benefits calculator
You can use the benefits calculator on the following websites to give you an initial idea if you are eligible for any type of benefit:

Further information

You can find out more about support for carers in our comprehensive guide:

Caring and MND: support for you

This can be downloaded in full or you can look at just the section you need. If preferred, we have a short booklet for carers:
Caring and MND: quick guide.

The full guide and the quick guide can also be ordered in print from our helpline, MND Connect.

Alternatively, you can contact Carers UK at www.carersuk.org, telephone: 0808 808 7777.

Information for download

You may find the following publications helpful:

10A - Benefits and entitlements
Information on the types of benefit and entitlement available, and whether you are likely to qualify, with guidance on how to apply.

10B - Direct payments and personalisation
Information about personal budgets for social care needs and personal health budgets for healthcare needs, and how you can use direct payments to manage these to buy your own services.

10C - Disabled Facilities Grants
Guidance on how and when to apply for a Disabled Facilities Grant (DFG) and other benefits regarding housing.

10D - NHS Continuing Healthcare
Details about NHS Continuing Healthcare and how to apply.

10E - Work and motor neurone disease
Information about available options if you are living with MND and considering whether to continue or leave employment, including information about the Access to Work scheme.

10G - Support for families with children
Details on some of the support you may be entitled to if you are a family with children affected by MND.

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